During the unprecedented Covid-19/Coronavirus pandemic, we have ensured that people with ME/CFS – and those who continue to experience symptoms following infection – are kept informed of the latest guidance and related information.
All the leaflets and template letters relating to the Covid vaccination are free to download. We periodically review and update them when new information emerges or the situation regarding the national restrictions are changed.
Please note these leaflets are downloads. You can read them on-screen and save to your computer, phone or other device and can attach them to any email you might need to send. But you will need access to a printer if you wish them printed.
1. Letter Templates: Covid-19 & ME/CFS Vaccine Eligibility
We have produced these template letter to help you obtain (Group 6) access to the Covid vaccines. They contain all the relevant supporting information necessary to make your case for priority treatment.
If you are unsuccessful after approaching your GP, you can use the second letter to approach your local clinical commissioning group (England) or health board (Wales). For information about Scotland:
CMO Scotland issues new guidance re: Group 6 Covid Vaccination Eligibility | 12 March 2021
MEA Letter to UK General Practitioners (GPs) (v5) – 19 March 2021
MEA Letter to CCGs (England) & Health Boards (Wales) – 19 March 2021
2. Letter Templates: Covid-19 & ME/CFS Clinical Vulnerability
Clinically Vulnerable Adults
This letter can be used if you need to assert your right to be considered a clinically vulnerable person with ME/CFS during the Covid-19 restrictions. It has been updated with useful links to the latest information.
Clinically Vulnerable Students
This letter is for students and can be used if you need to assert your right to be considered a clinically vulnerable person with ME/CFS during the Covid-19 restrictions. It has been updated with useful links to the latest information.
3. Covid-19 & ME/CFS Guidance
Covid-19 & ME/CFS Reducing the Risk of Infection – November 2020
People with ME/CFS are already in a vulnerable/high risk group when it comes to catching COVID-19 – mainly because it is highly likely to cause an exacerbation of existing symptoms, or a more persisting relapse. It’s important for everyone with ME/CFS to do all they can to reduce the risk of catching this infection. This means adopting a way of living that is based on individual circumstances and individual risk factors.
Covid-19 & ME/CFS Vaccine Update May 2021
Monday 4th January marked the start of the UK mass vaccination programme against COVID-19. In this free leaflet we discuss: Covid-19 vaccination priority and ME/CFS, The safety of the Covid vaccines in general, The safety of the Covid vaccines for people with ME/CFS, Vaccine administration practicalities, Making a decision whether to have the vaccine.
Long Covid & ME/CFS: Information & Management May 2021
In April and November 2020, we provided information and guidance to the management of post-covid fatigue, post-Covid fatigue syndromes and the overlap between ME/CFS and Long Covid.
This was based on how our knowledge and expertise about post-viral fatigue, post-viral fatigue syndromes and ME/CFS could be transferable to people who were not recovering from COVID-19, and where the symptoms were the same or very similar to ME/CFS.
It has now been fully updated in this 40-page booklet to take account of developments in our understanding of the presentations and management of post-COVID-19 and how best to name the various clinical presentations.
The ME Association Telephone Helpline: ME Connect
Here to listen. Here to help.
We deal with each person individually, in a sensitive and professional manner. Every communication is kept completely confidential. ME Connect is staffed by a fully trained and supervised team of volunteers – most of whom have personal experience of M.E.
“It is really good that you offer this service, it is such a relief to speak to someone who understands.”
CALL ME CONNECT
0344 576 5326
365 days a year
10am-12noon, 2pm-4pm, 7pm-9pm
“The role of ME Connect is simple. It is there to support people with ME and their carers to make informed choices. It is there to listen to a caller and try to understand all the issues they are facing. Each year it does this for thousands of people.
“Of all that The ME Association does for people with ME it is our Telephone Helpline of which I am proudest. It is what a charity is all about; giving help to those who need it at a difficult time in their lives…”
Neil Riley, Chairman, ME Association
“Thank you so much for giving up your time to work on this Helpline. It is just so nice to speak to someone who really understands what I am going through.”