Archive of MEA Surveys

To what extent do you also have gastric and bowel symptoms since being diagnosed with ME/CFS?

• Constant (25%, 131 Votes)
• Most of the time (47%, 249 Votes)
• Occasionally (19%, 102 Votes)
• Not at all (9%, 43 Votes)

Total Voters: 525

Start Date: February 1, 2014 @ 12:04 am
End Date: June 1, 2014 @ 8:08 am

What is the most important issue for The MEA to campaign on in 2014? You can tick up to six answers.

• Benefits (17%, 212 Votes)
• Medical Education (18%, 235 Votes)
• NHS Services (15%, 195 Votes)
• Nice Guideline Review (12%, 159 Votes)
• Research (21%, 266 Votes)
• Treatment Trials (16%, 208 Votes)
• None of the above (0%, 4 Votes)

Total Voters: 372

Start Date: January 1, 2014 @ 12:03 am
End Date: June 1, 2014 @ 8:07 am

Overall, what has happened to your ME/CFS over the past year?

• Major improvement (3%, 10 Votes)
• Minor improvement (17%, 64 Votes)
• No change (25%, 95 Votes)
• Minor deterioration (27%, 105 Votes)
• Major deterioration (28%, 108 Votes)

Total Voters: 382

Start Date: December 1, 2013 @ 3:01 pm
End Date: June 1, 2014 @ 8:07 am

Have you written to or visited your MP, MSP, AM, or MLA in relation to ME/CFS? If so, how helpful was his/her intervention?

• Very helpful (6%, 11 Votes)
• Partly helpful (13%, 25 Votes)
• Not helpful (33%, 64 Votes)
• Made things worse (2%, 3 Votes)
• Never contacted an MP (46%, 89 Votes)

Total Voters: 192

Start Date: November 1, 2013 @ 8:39 am
End Date: December 1, 2013 @ 8:38 am

What is your MAIN reason for using the MEA website?

• Diagnosis (26%, 136 Votes)
• Donating / Fundraising (0%, 1 Votes)
• Finding a Local Group (5%, 26 Votes)
• Finding an NHS Service (3%, 15 Votes)
• The news blog (22%, 112 Votes)
• Research (23%, 121 Votes)
• Treatment (14%, 71 Votes)
• Website poll (1%, 7 Votes)
• Other (6%, 31 Votes)

Total Voters: 519

Start Date: October 1, 2013 @ 11:48 am
End Date: November 1, 2013 @ 8:01 am

How many of your blood relatives have (or did have) a diagnosis of ME/CFS? Overseas votes are welcome in this poll.

• None (69%, 727 Votes)
• 1 (19%, 199 Votes)
• 2 (8%, 89 Votes)
• 3 (2%, 20 Votes)
• 4 (1%, 8 Votes)
• 5 (0%, 1 Votes)
• 6 or more (1%, 7 Votes)

Total Voters: 1,051

Start Date: September 1, 2013 @ 1:02 am
End Date: October 1, 2013 @ 1:00 am

Should ME/CFS charities that support research be collaborating to help fund a Rituximab trial?

• Yes (82%, 425 Votes)
• No (5%, 28 Votes)
• Not sure (10%, 54 Votes)
• Neutral (3%, 9 Votes)

Total Voters: 516

Start Date: August 4, 2013 @ 8:51 am
End Date: September 1, 2013 @ 1:01 am

Are you going to apply for a Personal Independence Payment (PIP) from the DWP?

• Yes- definitely (24%, 100 Votes)
• Yes - probably (7%, 28 Votes)
• Not sure (12%, 50 Votes)
• No (23%, 97 Votes)
• Not yet - I claim DLA (34%, 150 Votes)

Total Voters: 425

Start Date: July 1, 2013 @ 4:33 pm
End Date: August 4, 2013 @ 8:31 am

How supportive is your GP in providing medical evidence for DWP benefit claims?

• Very helpful (23%, 95 Votes)
• Fairly helpful (13%, 54 Votes)
• Variable (10%, 41 Votes)
• Never asked for help (17%, 70 Votes)
• Not helpful (15%, 64 Votes)
• Refuses to do so (5%, 22 Votes)
• Do not claim benefits (17%, 75 Votes)

Total Voters: 420

Start Date: June 1, 2013 @ 12:14 am
End Date: July 1, 2013 @ 4:35 pm

Should ME/CFS charities that fund/support research be joining the UK Research Collaborative?

• Yes – definitely (39%, 241 Votes)
• Yes – with caution (31%, 190 Votes)
• Not sure (9%, 54 Votes)
• No opinion (1%, 7 Votes)
• Probably not (5%, 29 Votes)
• Definitely not (15%, 101 Votes)

Total Voters: 622

Start Date: May 1, 2013 @ 10:26 am
End Date: June 2, 2013 @ 5:46 pm