Archive of MEA Surveys

Are you still driving a car following a diagnosis of ME/CFS?

• Yes - no change (16%, 70 Votes)
• Yes - when I feel OK to do so (41%, 183 Votes)
• Yes - on rare occasions (10%, 44 Votes)
• No - but I'm keeping my licence (17%, 76 Votes)
• No - I've surrendered my licence (3%, 14 Votes)
• No - my licence was revoked by the DVLA (1%, 3 Votes)
• I've never driven or owned a car (11%, 49 Votes)
• No - for other reasons (cost etc) (1%, 8 Votes)

Total Voters: 447

Start Date: August 2, 2015 @ 2:31 pm
End Date: March 10, 2016 @ 9:41 pm

Are you still driving a car following a diagnosis of ME/CFS?

• Yes - no change (6%, 9 Votes)
• Yes - when I feel OK to do so (47%, 69 Votes)
• Yes - on rare occasions (18%, 27 Votes)
• No - but I'm keeping my license (22%, 33 Votes)
• No - I've surrendered my license (1%, 2 Votes)
• I've never driven or owned a car (5%, 7 Votes)
• No - my licence was revoked by the DVLA (1%, 0 Votes)

Total Voters: 147

Start Date: August 1, 2015 @ 7:23 pm
End Date: March 10, 2016 @ 9:41 pm

If you have irritable bowel symptoms / syndrome in addition to ME/CFS, have you ever been tested to exclude coeliac disease?

• YES - definitely (44%, 176 Votes)
• YES - possibly (5%, 22 Votes)
• I don't know (5%, 20 Votes)
• NO (36%, 143 Votes)
• I don't have any IBS symptoms (10%, 41 Votes)

Total Voters: 402

Start Date: July 2, 2015 @ 10:45 am
End Date: August 1, 2015 @ 7:25 pm

Have you told us what you think of the MEA? Our survey and this poll are now CLOSED

• YES - because I appreciate being asked (83%, 44 Votes)
• YES - but only because I'm a member (2%, 1 Votes)
• YES - but only because I'm a non-member (2%, 1 Votes)
• NO – I'm not well enough to complete a survey (8%, 4 Votes)
• NO - I dislike surveys on principle (0%, 0 Votes)
• NO - Oh please! I have better things to do with my time! (5%, 3 Votes)

Total Voters: 53

Start Date: June 3, 2015 @ 8:06 am
End Date: No Expiry

Will you be contacting your new MP after the election to ask him/her to join the All Party Parliamentary Group on ME at Westminster?

• Definitely (31%, 45 Votes)
• Probably (13%, 19 Votes)
• Not sure (18%, 26 Votes)
• Probably not (27%, 38 Votes)
• Definitely not (11%, 15 Votes)

Total Voters: 143

Start Date: May 1, 2015 @ 10:10 am
End Date: No Expiry

How helpful has your union/professional body been when you have asked for help with an employment problem?

• Very helpful (0%, 0 Votes)
• Quite helpful (0%, 0 Votes)
• Not interested (0%, 0 Votes)
• Neutral (0%, 0 Votes)
• Unhelpful (0%, 0 Votes)
• Very unhelpful (0%, 0 Votes)
• Never asked for help (100%, 0 Votes)

Total Voters: 0

Start Date: April 1, 2015 @ 8:36 pm
End Date: May 1, 2015 @ 10:12 am

If you are still able to work, how helpful is your employer re: modifications to hours, duties, etc?

• Very helpful (9%, 21 Votes)
• Quite helpful (5%, 12 Votes)
• Varies: helpful and unhelpful (7%, 16 Votes)
• Neutral (3%, 7 Votes)
• Unhelpful (2%, 6 Votes)
• Very unhelpful (7%, 16 Votes)
• Unable to work (58%, 139 Votes)
• I'm self-employed (9%, 24 Votes)

Total Voters: 241

Start Date: April 1, 2015 @ 8:40 pm
End Date: May 1, 2015 @ 10:12 am

Should CFS and/or ME be renamed Systemic Exertion Intolerance Disease (SEID) as recommended in the U.S. Institute of Medicine Report?

• Yes - but for CFS only (9%, 67 Votes)
• Yes - but for ME only (3%, 26 Votes)
• Yes - for CFS and ME (14%, 108 Votes)
• Not sure (9%, 69 Votes)
• No opinion (1%, 11 Votes)
• No - do not like SEID (64%, 472 Votes)

Total Voters: 753

Start Date: March 1, 2015 @ 12:00 am
End Date: May 1, 2015 @ 10:13 am

If you need to nap during the daytime, how do you generally feel afterwards?

• Better cognitively, Unchanged physically (15%, 105 Votes)
• Better physically, Unchanged cognitively (7%, 46 Votes)
• Better - both cognitively and physically (29%, 198 Votes)
• No change (13%, 90 Votes)
• Worse - both cognitively and physically (15%, 107 Votes)
• Worse cognitively, Better physically (5%, 32 Votes)
• Worse physically, Better cognitively (3%, 18 Votes)
• I don't nap in the daytime (13%, 95 Votes)

Total Voters: 691

Start Date: February 3, 2015 @ 9:00 am
End Date: No Expiry

To what extent do you suffer from cold hands and/or feet during the winter months?

• All of the time (31%, 253 Votes)
• Most of the time (50%, 413 Votes)
• Only in cold weather (6%, 48 Votes)
• Occasionally (10%, 79 Votes)
• Never (3%, 25 Votes)

Total Voters: 818

Start Date: January 1, 2015 @ 8:15 am
End Date: No Expiry