Archive of MEA Surveys

Some researchers are linking ME to problems in childhood. So did you, on balance, have a happy childhood?

• Yes, very happy (27%, 336 Votes)
• Yes, happy (23%, 283 Votes)
• Neutral (4%, 46 Votes)
• Mixture of happy and unhappy (26%, 326 Votes)
• No, unhappy (12%, 152 Votes)
• No, very unhappy (8%, 109 Votes)

Total Voters: 1,254

Start Date: April 1, 2013 @ 12:18 am
End Date: June 2, 2013 @ 5:47 pm

Overall, how do you rate the content, layout, ease of use etc of the MEA website:

• Excellent (37%, 117 Votes)
• Good (41%, 129 Votes)
• Fair (14%, 43 Votes)
• Poor (4%, 11 Votes)
• Very poor (4%, 14 Votes)

Total Voters: 314

Start Date: March 1, 2013 @ 7:40 am
End Date: June 2, 2013 @ 5:47 pm

Does your current GP have the skills and knowledge to care for ME/CFS patients?

• NO - sympathetic but needs more education (43%, 413 Votes)
• NO - not interested in ME/CFS (21%, 204 Votes)
• YES - to some extent (17%, 164 Votes)
• NO - knows nothing about ME/CFS (11%, 108 Votes)
• YES - very much so (8%, 69 Votes)

Total Voters: 958

Start Date: February 1, 2013 @ 12:38 am
End Date: March 28, 2013 @ 5:22 pm

Overall, what has happened to your health in relation to ME/CFS during the course of 2012?

• Major improvement (4%, 39 Votes)
• Minor improvement (14%, 140 Votes)
• No change (19%, 194 Votes)
• Minor deterioration (31%, 320 Votes)
• Major deterioration (32%, 340 Votes)

Total Voters: 1,033

Start Date: January 1, 2013 @ 12:08 am
End Date: March 28, 2013 @ 5:22 pm

Who uses our website? Up to 2 votes per person are allowed

• I have ME/CFS (UK) (65%, 689 Votes)
• I have ME/CFS (Overseas) (4%, 39 Votes)
• I may have ME/CFS (9%, 92 Votes)
• Carer (3%, 32 Votes)
• Partner (4%, 42 Votes)
• Parent (6%, 69 Votes)
• Health Professional (3%, 32 Votes)
• Journalist/Broadcaster (0%, 4 Votes)
• Other (6%, 65 Votes)

Total Voters: 970

Start Date: December 1, 2012 @ 1:10 am
End Date: March 28, 2013 @ 5:21 pm

Have you consulted your MP (whole of the UK) about an ME/CFS or benefit related issue? If so, what was the response?

• Very helpful (10%, 45 Votes)
• Fairly helpful (9%, 40 Votes)
• Neutral (9%, 39 Votes)
• Unhelpful (18%, 83 Votes)
• Refused to help (6%, 27 Votes)
• Awaiting a response (4%, 16 Votes)
• No - never contacted my MP (44%, 205 Votes)

Total Voters: 457

Start Date: November 1, 2012 @ 12:00 am
End Date: December 31, 2012 @ 6:26 pm

If you have applied for ESA (Employment and Support Allowance), what was the outcome?

• Awaiting a decision (10%, 59 Votes)
• Placed in Support Group (14%, 78 Votes)
• Placed in Work Related Activity Group (24%, 136 Votes)
• Refused - successful on appeal (7%, 40 Votes)
• Refused - unsuccessful on appeal (7%, 41 Votes)
• Refused - appeal in progress (11%, 63 Votes)
• Refused - did not appeal (7%, 39 Votes)
• Have not applied for ESA (20%, 112 Votes)

Total Voters: 568

Start Date: October 2, 2012 @ 7:42 pm
End Date: November 1, 2012 @ 9:15 am

How many hours of solid uninterrupted sleep (regardless of medication) do you normally have each night?

• Less than one (1%, 22 Votes)
• 1-2 (8%, 159 Votes)
• 2-3 (18%, 349 Votes)
• 3-4 (22%, 420 Votes)
• 4-5 (14%, 273 Votes)
• 5-6 (10%, 188 Votes)
• 6-7 (7%, 137 Votes)
• 7-8 (6%, 119 Votes)
• 8-10 (7%, 124 Votes)
• More than 10 (7%, 98 Votes)

Total Voters: 1,890

Start Date: September 1, 2012 @ 6:02 am
End Date: November 1, 2012 @ 9:16 am

When you were diagnosed with ME/CFS, did the person who diagnosed you, OTHER THAN YOUR GP, give you notes to help you understand about ME and the best ways to cope with your symptoms?

• YES – they were helpful (11%, 84 Votes)
• YES – but they were not very helpful (5%, 38 Votes)
• YES – but they were not at all helpful (2%, 18 Votes)
• YES – but they were misleading (2%, 15 Votes)
• NO – I got my notes from my GP (4%, 30 Votes)
• NO – I did not receive any notes from the person who diagnosed me (73%, 559 Votes)
• CAN'T REMEMBER (3%, 18 Votes)

Total Voters: 764

Start Date: August 1, 2012 @ 2:12 am
End Date: November 1, 2012 @ 9:19 am

When you were diagnosed with ME/CFS, did your GP give you notes to help you understand about ME and the best ways to cope with your symptoms?

• YES - they were helpful (5%, 45 Votes)
• YES - but they were not very helpful. (3%, 30 Votes)
• YES - but they were not at all helpful. (1%, 9 Votes)
• YES - but they were misleading. (1%, 9 Votes)
• NO - I did not receive any GP notes. (88%, 797 Votes)
• CAN'T REMEMBER (2%, 11 Votes)

Total Voters: 903

Start Date: July 1, 2012 @ 2:06 am
End Date: November 1, 2012 @ 9:19 am