Archive of MEA Surveys

What are the most important issues about M.E. that you want your MP to raise/lobby about after the general election?

• Increased government funding for biomedical research (13%, 148 Votes)
• Inappropriate use of CBT and/or GET by the NHS (10%, 120 Votes)
• Fair and accurate medical assessments for DWP benefits (11%, 131 Votes)
• Children and adolescents - NHS services, education, inappropriate child care referrals (4%, 49 Votes)
• Severe ME - prioritising NHS home visits, including improving social and respite care (7%, 81 Votes)
• Provision of home visits from GPs for those that request them (6%, 74 Votes)
• Problems with local NHS specialist and/or referral services (7%, 80 Votes)
• Increased availability of all aspects of specialist/hospital based care (5%, 60 Votes)
• Provision of accurate and continuing medical education for all health professionals (12%, 133 Votes)
• Ending the stigma still surrounding the condition (10%, 114 Votes)
• All of the above (13%, 146 Votes)
• None of the above - please share your comments (0%, 0 Votes)
• Other - please share your comments (1%, 8 Votes)

Total Voters: 307

Start Date: November 5, 2019 @ 7:51 am
End Date: No Expiry

Do you own a pet? You can choose as many options as you like.

• Yes - Dog/s (26%, 153 Votes)
• Yes - Cat/s (24%, 138 Votes)
• Yes - Dog/s and Cat/s (6%, 35 Votes)
• Yes - Fish (5%, 29 Votes)
• Yes - Rabbit/s (2%, 14 Votes)
• Yes - Reptile/s (2%, 13 Votes)
• Yes - Horse/s (1%, 5 Votes)
• Yes - Rodent/s (1%, 7 Votes)
• Yes - Another type of pet (2%, 14 Votes)
• No - Can't own a pet due to ME/CFS severity (14%, 84 Votes)
• No - Can't own a pet due to allergies (4%, 24 Votes)
• No - Can't own a pet due mainly to cost (3%, 20 Votes)
• No - Can't own a pet due to a lack of space/facilities (5%, 32 Votes)
• No - Don't really like pets (2%, 14 Votes)

Total Voters: 454

Start Date: October 4, 2019 @ 10:20 am
End Date: No Expiry

If you were/are a pupil/student with M.E. what level of support did you receive from your school, college or university to help you manage your condition and remain in education?

• Excellent Support (4%, 4 Votes)
• Good Support (4%, 4 Votes)
• Adequate Support (1%, 1 Votes)
• Patchy Support – It was sometimes helpful, sometimes not (18%, 16 Votes)
• Unhelpful Support (8%, 7 Votes)
• Detrimental Support (11%, 10 Votes)
• No Support – I was unable to continue my studies and had to drop out (54%, 49 Votes)

Total Voters: 91

Start Date: September 4, 2019 @ 11:07 am
End Date: No Expiry

What category of illness severity best reflects your (or the person you care for's) current level of disability? Please refer to the current blog that provides the definitions.

• Mild (9%, 56 Votes)
• Moderate (42%, 268 Votes)
• Severe (39%, 252 Votes)
• Very Severe (10%, 62 Votes)

Total Voters: 638

Start Date: August 5, 2019 @ 10:05 am
End Date: No Expiry

As a person with M.E. what has been your experience of physiotherapy?

• Positive and helped make my M.E. much better (1%, 5 Votes)
• Positive and helped my M.E. (5%, 20 Votes)
• Positive but did not help my M.E. (13%, 59 Votes)
• Neither positive, nor negative (5%, 23 Votes)
• Negative but helped my M.E. (0%, 1 Votes)
• Negative and made my M.E. worse (16%, 71 Votes)
• Negative and made my M.E. much worse (12%, 53 Votes)
• I have not received physiotherapy for M.E. (48%, 209 Votes)

Total Voters: 441

Start Date: July 1, 2019 @ 5:55 pm
End Date: No Expiry

To what extent has loneliness and social isolation become a consequence of having ME?

• Constantly (42%, 175 Votes)
• Most of the time (39%, 164 Votes)
• Some of the time (17%, 69 Votes)
• Occasionally (1%, 6 Votes)
• Not at all (1%, 2 Votes)

Total Voters: 416

Start Date: June 6, 2019 @ 10:15 am
End Date: No Expiry

What does ME Awareness Week mean to you?

• Raising public awareness in general (13%, 160 Votes)
• Providing education/research material to health professionals (6%, 81 Votes)
• Informing politicians about the issues (6%, 80 Votes)
• Attracting new researchers to the field (6%, 69 Votes)
• Improving access to appropriate medical care (6%, 75 Votes)
• Reaching out to those who are undiagnosed (4%, 53 Votes)
• Highlighting the known facts about M.E. (8%, 99 Votes)
• Highlighting those severely affected by M.E. (7%, 83 Votes)
• Highlighting children and young people affected by M.E. (5%, 67 Votes)
• Campaigning for funding for biomedical research (8%, 97 Votes)
• Raising funds for M.E. charities (5%, 67 Votes)
• Dispelling the myths about M.E. (11%, 132 Votes)
• Connecting with people outside of the community (4%, 56 Votes)
• Having some fun and making friends (2%, 25 Votes)
• All of the above (8%, 94 Votes)
• None of the above (0%, 5 Votes)
• Other (please leave comment – see blog for details) (0%, 4 Votes)

Total Voters: 260

Start Date: May 1, 2019 @ 9:53 am
End Date: No Expiry

In addition to ME/CFS, do you have a diagnosis of any of the following conditions?

• Endometriosis (5%, 135 Votes)
• Fibromyalgia (16%, 423 Votes)
• Hypermobility/Ehlers Danlos syndrome (7%, 189 Votes)
• Interstitial Cystitis (3%, 75 Votes)
• Irritable Bowel Syndrome (21%, 575 Votes)
• Jaw pain - Temperomandibular Jaw Dysfunction (9%, 246 Votes)
• Migraine (16%, 441 Votes)
• Multiple Chemical Sensitivities (7%, 201 Votes)
• Postural orthostatic Tachycardia Syndrome (PoTS) (12%, 310 Votes)
• None of the above (4%, 97 Votes)

Total Voters: 1,024

Start Date: April 3, 2019 @ 8:17 am
End Date: No Expiry

Overall, how would you describe the effect that cognitive dysfunction (“brain fog”) has on your ability to function on a day-to-day basis?

• Constant and severely disabling (16%, 127 Votes)
• Constant and moderately disabling (17%, 134 Votes)
• Constant and mildly disabling (6%, 44 Votes)
• Varies between moderate and severe (23%, 183 Votes)
• Varies between mild and moderate (23%, 183 Votes)
• Varies between mild and severe (15%, 119 Votes)
• No longer suffer with cognitive dysfunction (1%, 4 Votes)
• Never had cognitive dysfunction (0%, 5 Votes)

Total Voters: 799

Start Date: March 5, 2019 @ 7:44 am
End Date: No Expiry

If you have used private or NHS counselling to help with emotional, mental health or relationship problems linked to ME/CFS did you find it helpful?

• Yes - very helpful overall (9%, 25 Votes)
• Yes - very helpful for some aspects (7%, 19 Votes)
• Yes - quite helpful overall (4%, 10 Votes)
• Yes - quite helpful for some aspects (18%, 49 Votes)
• Neutral - neither helpful nor unhelpful (7%, 19 Votes)
• No - but not harmful (9%, 26 Votes)
• No - the approach taken made matters worse (13%, 36 Votes)
• Never tried counselling (33%, 94 Votes)

Total Voters: 278

Start Date: February 1, 2019 @ 5:50 pm
End Date: No Expiry