MEA Surveys

Current Survey

    If you have ME/CFS and have made use of the MEA Covid vaccine priority template letters (for GPs and/or CCGs/Health Boards), what was the outcome?

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Archive of Surveys

Should assisting severely ill/disabled people to commit suicide be a criminal offence?

  • Never (33%, 376 Votes)
  • Rarely (26%, 304 Votes)
  • Sometimes (24%, 273 Votes)
  • Always (12%, 139 Votes)
  • Not sure (5%, 62 Votes)
  • Total Voters: 1,154

Start Date: February 1, 2010 @ 3:13 pm
End Date: March 6, 2010 @ 3:13 pm

Should doctors be free to prescribe unproven/unlicensed drugs or supplements for people with ME/CFS?

  • Never (32%, 239 Votes)
  • Sometimes (29%, 215 Votes)
  • Always (17%, 126 Votes)
  • Occasionally (11%, 82 Votes)
  • Not sure (11%, 80 Votes)
  • Total Voters: 742

Start Date: January 6, 2010 @ 3:11 pm
End Date: February 1, 2010 @ 3:11 pm

Overall, how has your ME/CFS health been during 2009?

  • Major deterioration (29%, 225 Votes)
  • Variable (26%, 199 Votes)
  • Minor deterioration (19%, 144 Votes)
  • Minor improvement (12%, 90 Votes)
  • Static (10%, 76 Votes)
  • Major improvement (4%, 37 Votes)
  • Total Voters: 771

Start Date: December 2, 2009 @ 3:08 pm
End Date: January 6, 2010 @ 3:08 pm

Have you found the recent publicity and controversy over the XMRV virus, prostate cancer and ME/CFS...

  • promising? (38%, 286 Votes)
  • potentially useful (24%, 182 Votes)
  • uplifting? (19%, 144 Votes)
  • confusing? (8%, 60 Votes)
  • worrying? (5%, 41 Votes)
  • potentially damaging? (6%, 41 Votes)
  • Total Voters: 754

Start Date: November 1, 2009 @ 3:04 pm
End Date: December 2, 2009 @ 3:04 pm

What was your overall state of health and fitness before developing ME/CFS?

  • Excellent (44%, 712 Votes)
  • Good (38%, 626 Votes)
  • Average (12%, 192 Votes)
  • Poor (3%, 52 Votes)
  • Very poor (2%, 26 Votes)
  • Cannot remember (1%, 23 Votes)
  • Total Voters: 1,631

Start Date: September 30, 2009 @ 3:01 pm
End Date: November 1, 2010 @ 3:01 pm

Overall, how would you describe the attitude of doctors involved in benefit (eg DLA) assessments.

  • Hostile (39%, 170 Votes)
  • Unhelpful (39%, 169 Votes)
  • Impartial (9%, 41 Votes)
  • Helpful (7%, 29 Votes)
  • Very helpful (6%, 27 Votes)
  • Total Voters: 436

Start Date: September 1, 2009 @ 2:45 pm
End Date: November 2, 2009 @ 2:45 pm

Have you ever taken probiotics? - health supplements that contain 'good bacteria'.

  • Never taken probiotics (30%, 236 Votes)
  • Didn't find them helpful (27%, 206 Votes)
  • Found them helpful (22%, 173 Votes)
  • Found them very helpful (16%, 120 Votes)
  • Felt worse (3%, 22 Votes)
  • Felt a lot worse (2%, 17 Votes)
  • Total Voters: 774

Start Date: August 1, 2009 @ 2:41 pm
End Date: September 10, 2009 @ 2:41 pm

At what age did your ME/CFS symptoms first occur?

  • 20-29 (23%, 634 Votes)
  • 30-39 (23%, 627 Votes)
  • 40-49 (19%, 507 Votes)
  • 13-19 (16%, 447 Votes)
  • 50-59 (8%, 206 Votes)
  • Under 12 (6%, 166 Votes)
  • 60-69 (2%, 57 Votes)
  • No clear onset (1%, 38 Votes)
  • 70+ (1%, 18 Votes)
  • Cannot remember (1%, 11 Votes)
  • Total Voters: 2,711

Start Date: July 1, 2009 @ 2:37 pm
End Date: November 2, 2009 @ 2:37 pm

What effect does hot weather have on your ME/CFS?

  • Feel much worse (40%, 488 Votes)
  • Feel a bit worse (20%, 246 Votes)
  • Feel a bit better (19%, 236 Votes)
  • No change (11%, 128 Votes)
  • Feel much better (10%, 121 Votes)
  • Total Voters: 1,219

Start Date: June 1, 2009 @ 2:34 pm
End Date: August 30, 2009 @ 2:34 pm

In the past year, how much have you spent on treatments for ME/CFS not available on the NHS?

  • £100 - £500 (26%, 157 Votes)
  • Nothing (22%, 136 Votes)
  • £1,000 - £5,000 (19%, 115 Votes)
  • £500 - £1,000 (15%, 94 Votes)
  • Less than £100 (12%, 71 Votes)
  • £5,000 - £10,000 (4%, 23 Votes)
  • More than £10,000 (2%, 15 Votes)
  • Total Voters: 611

Start Date: May 1, 2009 @ 2:30 pm
End Date: November 2, 2009 @ 2:30 pm

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