MEA Surveys

Current Survey

    If you have ME/CFS and have made use of the MEA Covid vaccine priority template letters (for GPs and/or CCGs/Health Boards), what was the outcome?

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Archive of Surveys

If you are unable to work due to ME/CFS, what is the best description of your current benefit status?

  • Receiving ICB (42%, 223 Votes)
  • Appealing re: ICB (4%, 19 Votes)
  • Lost appeal re:ICB (2%, 13 Votes)
  • Refused ICB - not appealing (2%, 13 Votes)
  • Receiving ESA (14%, 73 Votes)
  • Appealing re: ESA (9%, 46 Votes)
  • Lost appeal re: ESA (1%, 6 Votes)
  • Refused ESA - not appealing (1%, 6 Votes)
  • Never applied (16%, 84 Votes)
  • Not eligible (9%, 49 Votes)
  • Total Voters: 532

Start Date: November 30, 2010 @ 5:35 pm
End Date: January 4, 2011 @ 6:26 am

Overall, how do you rate the UK press coverage of ME/CFS news items so far this year?

  • Very helpful (7%, 26 Votes)
  • Helpful (17%, 64 Votes)
  • Neutral (22%, 81 Votes)
  • Unhelpful (34%, 126 Votes)
  • Very unhelpful (20%, 79 Votes)
  • Total Voters: 376

Start Date: November 1, 2010 @ 7:43 am
End Date: November 30, 2010 @ 6:22 pm

Which of the following best describes your current ability to undertake any type of paid employment?

  • I can work FULL-TIME (7%, 175 Votes)
  • I can work PART-TIME (11%, 264 Votes)
  • I can work OCCASIONALLY (11%, 260 Votes)
  • I CANNOT WORK (71%, 1,637 Votes)
  • Total Voters: 2,336

Start Date: September 27, 2010 @ 12:00 pm
End Date: September 30, 2010 @ 10:15 am

How long is the waiting time to be seen at your local NHS hospital-based ME/CFS clinic/service?

  • no waiting list (1%, 8 Votes)
  • less than 1 month (2%, 16 Votes)
  • 1-2 months (8%, 58 Votes)
  • 3-4 months (12%, 86 Votes)
  • 5-6 months (9%, 69 Votes)
  • 7-8 months (4%, 29 Votes)
  • 9-12 months (5%, 39 Votes)
  • more than 12 months (11%, 79 Votes)
  • waiting list full/closed (1%, 10 Votes)
  • no local service (47%, 333 Votes)
  • Total Voters: 727

Start Date: September 30, 2010 @ 10:12 am
End Date: November 1, 2010 @ 7:50 am

What should be the top priority for the reformed All Party Parliamentary Group (APPG) on ME?

  • XMRV (47%, 913 Votes)
  • Benefits (23%, 442 Votes)
  • Medical Education (14%, 274 Votes)
  • MRC Research (6%, 108 Votes)
  • NHS Services (4%, 78 Votes)
  • NICE Guideline Review (4%, 74 Votes)
  • Severely affected (2%, 47 Votes)
  • Children's Issues (1%, 15 Votes)
  • None of the above (0%, 7 Votes)
  • Total Voters: 1,958

Start Date: July 30, 2010 @ 3:45 pm
End Date: August 31, 2010 @ 3:45 pm

Before you became ill with ME/CFS how much physical exercise did you normally take?

  • Below average (30%, 429 Votes)
  • Above average (24%, 339 Votes)
  • Average (23%, 325 Votes)
  • A lot (21%, 297 Votes)
  • Very little (2%, 45 Votes)
  • Total Voters: 1,435

Start Date: June 30, 2010 @ 3:41 pm
End Date: July 30, 2010 @ 3:41 pm

If you have had an ATOS medical assessment in relation to a DLA or ESA benefit application, how do you rate the procedure?

  • Dreadful (70%, 327 Votes)
  • Very poor (16%, 76 Votes)
  • Poor (7%, 32 Votes)
  • Neutral (3%, 12 Votes)
  • Excellent (2%, 10 Votes)
  • Good (2%, 10 Votes)
  • Total Voters: 467

Start Date: June 2, 2010 @ 3:25 pm
End Date: June 30, 2010 @ 3:25 pm

If your ME/CFS was triggered by a vaccination, which vaccine was involved?

  • Hepatitis B (57%, 338 Votes)
  • Flu (9%, 51 Votes)
  • Other (7%, 41 Votes)
  • BCG (6%, 33 Votes)
  • Cannot remember (5%, 31 Votes)
  • Combination (5%, 27 Votes)
  • Tetanus (3%, 18 Votes)
  • Meningitis (3%, 17 Votes)
  • MMR (2%, 14 Votes)
  • Polio (2%, 10 Votes)
  • Hepatitis A (1%, 7 Votes)
  • Typhoid (0%, 4 Votes)
  • Total Voters: 591

Start Date: April 30, 2010 @ 3:20 pm
End Date: June 2, 2010 @ 3:20 pm

Do you think that XMRV is likely to be directly involved in causing ME/CFS?

  • Possibly (42%, 261 Votes)
  • Probably (18%, 113 Votes)
  • Definitely (15%, 94 Votes)
  • Unlikely (13%, 82 Votes)
  • Not sure (9%, 57 Votes)
  • No chance (3%, 14 Votes)
  • Total Voters: 621

Start Date: April 1, 2010 @ 3:18 pm
End Date: April 30, 2010 @ 3:18 pm

The NHS spends over £4m a year on homeopathic treatments and hospitals. Should they do so?

  • No (50%, 344 Votes)
  • Yes (35%, 242 Votes)
  • Not sure (15%, 97 Votes)
  • Total Voters: 683

Start Date: March 6, 2010 @ 3:16 pm
End Date: April 1, 2010 @ 3:16 pm

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