MEA Surveys

Current Survey

    If you have ME/CFS and have made use of the MEA Covid vaccine priority template letters (for GPs and/or CCGs/Health Boards), what was the outcome?

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Archive of Surveys

How much do you roughly spend in a year on vitamins, minerals and other health supplements?

  • Nothing (19%, 146 Votes)
  • Less than £5 (6%, 45 Votes)
  • £5 - £25 (9%, 67 Votes)
  • £25 - £50 (10%, 80 Votes)
  • £50 - £100 (14%, 104 Votes)
  • £100 - £250 (15%, 116 Votes)
  • £250 - £500 (10%, 78 Votes)
  • £500 - £1000 (9%, 68 Votes)
  • Over £1000 (8%, 61 Votes)
  • Total Voters: 766

Start Date: October 1, 2011 @ 12:01 am
End Date: November 1, 2011 @ 11:00 am

When the opportunity arises, would you be willing to donate a blood sample to the M.E. Biobank?

  • Yes - definitely (84%, 722 Votes)
  • Yes - probably (11%, 92 Votes)
  • Not sure (3%, 24 Votes)
  • Probably not (1%, 7 Votes)
  • Definitely not (1%, 14 Votes)
  • Total Voters: 859

Start Date: September 1, 2011 @ 11:57 am
End Date: October 1, 2011 @ 12:00 pm

Have you ever been given a written management plan by a doctor or ME/CFS clinic?

  • Yes - from a GP (1%, 11 Votes)
  • Yes - from a consultant (2%, 22 Votes)
  • Yes - from an ME/CFS clinic (13%, 131 Votes)
  • Yes - from a private doctor (3%, 31 Votes)
  • No (78%, 812 Votes)
  • Do not see a doctor (3%, 28 Votes)
  • Total Voters: 1,035

Start Date: August 1, 2011 @ 1:07 am
End Date: September 1, 2011 @ 12:21 pm

What has happened to your weight since the onset of ME? (1 stone = 6.4kg)

  • Large increase – over 3 stone (20%, 273 Votes)
  • Moderate increase – 1 to 3 stone (33%, 443 Votes)
  • Small increase – up to 1 stone (10%, 129 Votes)
  • Fluctuates (12%, 161 Votes)
  • No change (6%, 86 Votes)
  • Small loss - less than 1 stone (7%, 100 Votes)
  • Moderate loss – 1 to 2 stone (7%, 94 Votes)
  • Large loss - more than 2 stone (5%, 57 Votes)
  • Total Voters: 1,343

Start Date: July 1, 2011 @ 10:26 am
End Date: September 1, 2011 @ 12:20 pm

Does XMRV infection play a significant role in causing ME/CFS?

  • Yes - definitely (10%, 49 Votes)
  • Yes - probably (22%, 110 Votes)
  • Not sure (39%, 199 Votes)
  • Not interested in XMRV (2%, 8 Votes)
  • Probably not (21%, 109 Votes)
  • Definitely not (6%, 33 Votes)
  • Total Voters: 508

Start Date: June 3, 2011 @ 10:05 am
End Date: July 1, 2011 @ 10:36 am

What effect has melatonin (purchased or prescribed as Circadin) had on your sleep disturbance?

  • Very helpful (11%, 43 Votes)
  • Helpful (14%, 55 Votes)
  • No benefit (9%, 36 Votes)
  • Made worse (3%, 11 Votes)
  • Made much worse (2%, 8 Votes)
  • Never used melatonin (61%, 244 Votes)
  • Total Voters: 397

Start Date: May 4, 2011 @ 5:10 pm
End Date: June 3, 2011 @ 9:08 am

What effect has a course of antibiotics usually had on your fatigue level?

  • Major improvement (7%, 43 Votes)
  • Minor improvement (10%, 67 Votes)
  • No effect (34%, 215 Votes)
  • Slightly worse (11%, 73 Votes)
  • Much worse (18%, 116 Votes)
  • Never take antibiotics (20%, 125 Votes)
  • Total Voters: 639

Start Date: March 31, 2011 @ 11:25 pm
End Date: April 30, 2011 @ 7:28 am

How will the PACE trial results affect the NHS management of people with ME/CFS?

  • Improve it a lot (3%, 20 Votes)
  • Improve it a bit (2%, 15 Votes)
  • Not sure (5%, 40 Votes)
  • No opinion (1%, 6 Votes)
  • Make it a bit worse (10%, 75 Votes)
  • Make it much worse (79%, 595 Votes)
  • Total Voters: 751

Start Date: March 1, 2011 @ 9:18 am
End Date: March 30, 2011 @ 8:28 am

Do you welcome the MRC announcement on ME/CFS biomedical research priorities and the £1.5 million of ring-fenced funding?

  • Yes (8%, 59 Votes)
  • Yes – but needs more funding (27%, 211 Votes)
  • Yes - but it must be biomedical research (59%, 451 Votes)
  • Not sure (2%, 13 Votes)
  • NO (4%, 35 Votes)
  • Total Voters: 769

Start Date: February 1, 2011 @ 11:31 am
End Date: March 1, 2011 @ 5:27 am

Where have you obtained the most useful/helpful information about your ME/CFS?

  • Alternative therapist (4%, 27 Votes)
  • GP (3%, 17 Votes)
  • Internet (51%, 329 Votes)
  • Local support group (4%, 28 Votes)
  • National charity (10%, 68 Votes)
  • NHS clinic (2%, 15 Votes)
  • NHS physician (2%, 14 Votes)
  • OT, physio or nurse (2%, 13 Votes)
  • Private physician (5%, 32 Votes)
  • Psychiatrist, psychologist or CBT therapist (2%, 11 Votes)
  • Self-help book (7%, 48 Votes)
  • None of the above (8%, 49 Votes)
  • Total Voters: 651

Start Date: January 4, 2011 @ 9:30 am
End Date: January 31, 2011 @ 6:27 am

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