Kay Gilderdale trial: third day

From the Brighton Evening Argus, 20 January 2010 Internet searches on how to commit suicide were made on the computer of a mother accused of trying to murder her seriously-ill daughter, a court heard today.

Kay Gilderdale trial: second day

From the Brighton Evening Argus, 19 January 2009 The father of a bed-ridden young woman who died after being aided by her mother told a court today of his daughter’s determination to end her own life to rid her suffering.

Kay Gilderdale trial: prosecution opens

From the Brighton Evening Argus, 18 January 2010 A “caring and loving” East Sussex mother helped end her long-suffering daughter’s life following a 17-year battle with illness by handing her a lethal dose of morphine and a cocktail of drugs, a court heard today.

Lack of a formal system to notify adverse reactions to graded exercise

Here’s an interesting discussion on CBT and graded exercise in the Journal of Rehabilitation Medicine – prompted by a joint letter from registered health psychologist Dr Ellen Goudsmit and Tom Kindlon, who is vice-chairman of the Irish ME/CFS Association, on the lack of a formal system to notify adverse reactions to graded exercise.  To read […]

XMRV: new story in Science magazine today (15 January)

A new story by Sam Kean on XMRV appears in Science magazine today (Friday 15 January) – in which he discusses the impact on the debate of the Imperial College London replication study which couldn’t find a trace of the  virus in blood samples from CFS patients that they examined.

Colchester boy’s musical takes to the stage

From the Colchester Gazette, 13 January 2010 (Story by Ryan McCarthy) A new  musical has been written and composed by a 16-year-old boy who suffers from ME. When the curtain comes up on Wanted – the Legend of Robin Hood, it will be the culmination of two years’ hard work for Edward Court.

Kings College Hospital authors respond to criticisms of the type of ME/CFS patients selected for XMRV testing at Imperial College:

…”Overall, we wish to emphasis, and to do so emphatically, that our patients are typical of CFS patients seen in specialist care elsewhere. We specifically refute the suggestion that our patients are in some way more “psychiatric”, whatever that means, than those with “real CFS”, an assertion that has been repeatedly made in other venues“… […]

Bad weather postponement – Haywards Heath self-management course

ReMEmber’s latest self-management training course, which was due to start on Wednesday this week (January 13) at Haywards Heath, West Sussex, has been put back until Wednesday February 3 because of the bad weather. For more details about this course and other events in the ME/CFS calendar for 2010, click here.

Seconds out: a fight over the cause of a mysterious disease

From The Economist, 7 January 2010 LAST October a discovery was made that brought hope to millions of sufferers from chronic fatigue syndrome (CFS). A group of researchers found a bug with the long-winded name of xenotropic murine leukaemia virus-related virus (XMRV) in 67% of American patients with CFS (as opposed to 4% of healthy […]

ScienceNOW covers the latest XMRV controversy

From ScienceNOW Daily News, 6 January 2010 (Story by Sam Kean). ScienceNOW is owned by the American Association for the Advancement of Science, who also publish Science magazine which in October last year broke the story of the WPI discovery. Here we go again. Late last year, scientists seemed to be homing in on the […]

Whittemore Peterson Institute responds to Imperial College XMRV study

The Whittemore Peterson Institute (WPI) has reviewed the paper entitled “Failure to Detect the Novel Retrovirus XMRV in Chronic Fatigue Syndrome.” This study did not duplicate the rigorous scientific techniques used by WPI, the National Cancer Institute and the Cleveland Clinic, therefore it cannot be considered a replication study nor can the results claim to […]

New Scientist reports the Imperial College XMRV study

From New Scientist, 6 January 2010. (Story by Claire Wilson and Ewen Callaway). The theory that chronic fatigue syndrome could be caused by a virus that jumped from mice to people has been dealt a blow by a British study that has found no evidence of the virus in people diagnosed with CFS.

ME CONNECT HELPLINE

0344 576 5326

Available every day of the week between these times: 10am - 12noon, 2pm - 4pm and 7pm - 9pm.

Calls cost the same as other standard landline numbers (starting 01 or 02). If you have a call package for your landline or mobile phone then calls will normally come out of your inclusive minutes.