From the Brighton Evening Argus, 20 January 2010 Internet searches on how to commit suicide were made on the computer of a mother accused of trying to murder her seriously-ill daughter, a court heard today.
From the Brighton Evening Argus, 19 January 2009 The father of a bed-ridden young woman who died after being aided by her mother told a court today of his daughter’s determination to end her own life to rid her suffering.
From the Brighton Evening Argus, 18 January 2010 A “caring and loving” East Sussex mother helped end her long-suffering daughter’s life following a 17-year battle with illness by handing her a lethal dose of morphine and a cocktail of drugs, a court heard today.
Here’s an interesting discussion on CBT and graded exercise in the Journal of Rehabilitation Medicine – prompted by a joint letter from registered health psychologist Dr Ellen Goudsmit and Tom Kindlon, who is vice-chairman of the Irish ME/CFS Association, on the lack of a formal system to notify adverse reactions to graded exercise. To read […]
Following the Daily Mail apology over their online vote about whether ME is a genuine illness, the Nursing Times website has launched its own poll on whether the Daily Mail is bad for people’s health.
A new story by Sam Kean on XMRV appears in Science magazine today (Friday 15 January) – in which he discusses the impact on the debate of the Imperial College London replication study which couldn’t find a trace of the virus in blood samples from CFS patients that they examined.
From the website of the Heart radio station in Sussex (undated) JURORS called up to hear the trial of a mother accused of attempting to murder her seriously ill daughter were given the option to step down if they had strong feelings about euthanasia.
The Daily Mail have apologised for their controversial website poll ‘Do you think ME is a genuine illness?’. The poll – originally put up to accompany the paper’s coverage of the XMRV debate – was pulled from the website after a huge outcry from many people with ME/CFS and a sustained email campaign from several […]
The next meeting of the All Party Parliamentary Group on ME will be held 1.30-3pm, Wednesday 10 March 2010, Committee Room 18, House of Commons. The agenda will follow in due course.
The official minutes of the meeting of the APPG on ME held on 2 December 2009 – together with a verbatim transcript – are now available for downloading from this website.
From the Colchester Gazette, 13 January 2010 (Story by Ryan McCarthy) A new musical has been written and composed by a 16-year-old boy who suffers from ME. When the curtain comes up on Wanted – the Legend of Robin Hood, it will be the culmination of two years’ hard work for Edward Court.
ProHealth and the HHV-6 Foundation will host a free presentation & Q&A session by XMRV researcher Judy Mikovits, PhD – to be held in Santa Barbara, CA, and streamed live on ProHealth.com Friday, January 22, 2010. Annette Whittemore, founder and president of the Whittemore-Peterson Institute, will open the event.
From the Reno Gazette-Journal, 13 January 2010 (Story by Lenita Powers) Reno scientists who found a link between a retrovirus and people with Chronic Fatigue Syndrome are scoffing at a challenge from British researchers who claim the discovery was false.
…”Overall, we wish to emphasis, and to do so emphatically, that our patients are typical of CFS patients seen in specialist care elsewhere. We specifically refute the suggestion that our patients are in some way more “psychiatric”, whatever that means, than those with “real CFS”, an assertion that has been repeatedly made in other venues“… […]
The trial opened today at Lewes Crown Court of Kay Gilderdale, who is accused of attempting to murder her daughter Lynn, who was so severely disabled after 17 years with ME that she was left paralysed and unable to feed herself. The court hearing is expected to last up to three weeks.
ReMEmber’s latest self-management training course, which was due to start on Wednesday this week (January 13) at Haywards Heath, West Sussex, has been put back until Wednesday February 3 because of the bad weather. For more details about this course and other events in the ME/CFS calendar for 2010, click here.
From The Economist, 7 January 2010 LAST October a discovery was made that brought hope to millions of sufferers from chronic fatigue syndrome (CFS). A group of researchers found a bug with the long-winded name of xenotropic murine leukaemia virus-related virus (XMRV) in 67% of American patients with CFS (as opposed to 4% of healthy […]
From ScienceNOW Daily News, 6 January 2010 (Story by Sam Kean). ScienceNOW is owned by the American Association for the Advancement of Science, who also publish Science magazine which in October last year broke the story of the WPI discovery. Here we go again. Late last year, scientists seemed to be homing in on the […]
The Whittemore Peterson Institute (WPI) has reviewed the paper entitled “Failure to Detect the Novel Retrovirus XMRV in Chronic Fatigue Syndrome.” This study did not duplicate the rigorous scientific techniques used by WPI, the National Cancer Institute and the Cleveland Clinic, therefore it cannot be considered a replication study nor can the results claim to […]
From New Scientist, 6 January 2010. (Story by Claire Wilson and Ewen Callaway). The theory that chronic fatigue syndrome could be caused by a virus that jumped from mice to people has been dealt a blow by a British study that has found no evidence of the virus in people diagnosed with CFS.