At a time of such great economic uncertainty, we’re getting an unprecedented number of inquiries about the work-place rights of people with ME/CFS – many of whom, particularly if they had to take time off work because of their illness, are worried about whether they will still have jobs in the near future.
Hansard source In his third parliamentary question about ME this week, Stroud MP David Drew asked the Secretary of State for Health whether his Department plans to provide funding for biomedical research into the causes, transmission and treatment of (a) myalgic encephalomyelitis and (b) other xenotropic murine leukaemia virus-related illnesses.
Hansard source David Drew, Labour MP for Stroud in Gloucestershire, asked the Secretary of State for Health two questions on blood donation by people with ME.
The ME Association is continually updating its website information and guidance for people with ME/CFS in relation to swine flu, Tamiflu and swine flu vaccination.
From the Daily Mail, 28 January 2010 (Story by Gill Swain) Only after her daughter drew her last breath, says Kay Gilderdale, did she finally collapse sobbing, flinging herself across Lynn’s body as she clung to the only thought that brought her any comfort: this is what my daughter wanted.
BBC One is to broadcast a Panorama special on the Kay Gilderdale case next Monday, 1 February.
From the Daily Telegraph, 27 January 2010 (Story by Neil Tweedie) Kay Gilderdale is beginning the rest of her life. For the first time in 18 years she has experienced something like relief, the shadow cast by her daughter’s tormented life, and the traumatic manner of its end, lifted at last.
From the Daily Telegraph, 27 January 2010 (Story by Tracy Corrigan) The story of the Gilderdales has awakened painful memories for Tracy Corrigan.
From The Times, 26 January 2010 (story by Frances Gibb, Legal Editor) One devoted mother who helps her sick daughter to end her life with tablets and morphine walks free from court with a suspended sentence.
From The Times Online: 25 January 2010 Lynn Gilderdale had ME diagnosed at the age of 14, triggering her descent from an active teenager to a lonely, bed-ridden young woman dependent on round-the-clock care.
From The Times, 26 January 2010 (Words by Lynn Gilderdale) OK guys, I have something really important to say. I want to talk about something extremely private and personal to share with you, my closest friends. After many years of serious deliberation, I have pretty much come to a huge decision. I hope you will […]
From The Times, 26 January 2010 (Story by Steve Bird) A High Court judge has criticised the Director of Public Prosecutions for personally pursuing an attempted murder charge against a “selfless and devoted” mother who helped her acutely ill daughter fulfil her wish to die.
From The Times Online, 25 January 2010 (Story by Steve Bird) A “loving and devoted mother” who gave her acutely ill daughter a cocktail of drugs after handing her a morphine overdose was today cleared of attempted murder.
From The Times Online, 25 January 2010 (Story by Steve Bird) Sitting in the historic wood-panelled dock at Lewes Crown Court, the diminutive figure of Kay Gilderdale did not fit with the stereotypical image of a murderer.
A jury today cleared Kay Gilderdale of attempting to murder to daughter. The charge of assisting in her daughter’s suicide was not proceeded with. She has left Lewes Crown Court a free woman. More later…
From The Times, 25 January 2010 (Story by Penny Wark) ME has no known cause and no cure. So why is more not being done to give hope to sufferers?
From the Daily Telegraph, 23 January 2010. (Story by Caroline Gammell) A mother, Kay Gilderdale, accused of murdering her chronically ill daughter Lynn after a failed suicide bid begged her not to kill herself and spent 30 hours trying to ease her pain, a court heard.
Quick reminder – Dr Judy Mikovits, whose team at the Whittemore Peterson Institute for Neuro-Immune Disease in Nevada reported last October that they had discovered a heavy prevalence of XMRV virus in blood samples taken from people with ME/CFS, will discuss the findings before a live audience tonight, beginning at 10pm UK time. The discussion […]
This is a summary of key points to emerge from two meetings of The ME Association Board of Trustees. These meetings took place at our Head Office in Buckingham on Monday afternoon, 18 January 2010 and on Tuesday morning, 19 January.
From the Eastern Daily Press, 22 January 2010 (Story by Rebecca Gough) Patients with severe ME who have complained of feeling neglected by the NHS could see treatment improve as early as the summer according to health chiefs.