From The Herald, Glasgow, 28 June 2010 (story by Marisa Duffy) On arrival at the Renfrewshire home of children’s author and model railway engineer Chris Vine, there is no doubt it is the correct house.
Do you forget to return that phone call? Forget appointments? Has it become worse since you were diagnosed with ME? The Chronic Illness Research Team (CIRT) at the University of East London, led by Professor Christine Dancey, has already published work which showed a small group of people with ME had some specific memory problems. […]
Dr Esther Crawley’s team at the Royal National Hospital for Rheumatic Diseases in Bath have been awarded £164,000 to to investigate whether it is possible to recruit to a randomised controlled trial studying how the Lightning Process compares with specialised medical care in the treatment of childhood ME/CFS. The funding comes from the Linbury Trust […]
The next All Party Parliamentary Group on M.E. will meet in Committee Room 18, House of Commons, between 1.30 and 3pm, Wednesday 10 March 2010.
ME ASSOCIATION SUMMARY AND COMMENT A third European XMRV study, which has attempted to find the human retrovirus XMRV in people with ME/CFS, has failed to do so. Results from the case-control study by Kuppeveld et al is reported today in the British Medical Journal:along with an accompanying editorial from Professors Myra McClure and Simon Wessely.
A Dutch team has failed to find evidence of the XMRV virus in blood samples taken from Dutch patients with Chronic Fatigue Syndrome. The BMJ also carries an editorial by retrovirologist Professor Myra McClure, of Imperial College London, and Professor Simon Wessely, of the Institute of Psychiatry at King’s College, London. BMJ Report Editorial
MPs discussed ME in a short debate in the House of Commons last night (Tuesday, 23 February 2010).
The BBC’s current affairs department is investigating the difficulties people face when trying to claim Employment and Support Allowance (ESA), for a television documentary.
From the Sunday Telegraph, 21 February 2010 (Story by health correspondent, Laura Donnelly) Homoeopathic medicines should not be allowed to make claims they cannot justify and should not be paid for by the taxpayer, MPs will recommend.
The ME Association’s Ramsay Research Fund (RRF) is a separate ring-fenced research fund that supports biomedical studies aimed at increasing our understanding of the underlying disease process in ME/CFS as well as clinical studies aimed at finding more effective forms of treatment.
Issued by the Whittemore Peterson Institute today (18 February 2010) WPI is aware of the recent UK study that was unable to detect the presence of XMRV in any CFS patient samples. Although researchers at the WPI were not involved in this project, our work in XMRV continues with researchers around the world. We look […]
Letter to the Belfast Telegraph, 18 February 2010 Thank you for the article highlighting ME (February 9). I am now in my fourth year of suffering from the illness. Like Lynn Gilderdale, my ME was brought on by glandular fever and severe tonsillitis as a child.
From the Manchester Evening News, 18 February 2010 Health bosses have pulled the plug on two new ME clinics in Tameside and Glossop in a bid to claw back a big budget deficit.
From ScienceNOW magazine, published by the American Association for the Advancement of Science, 16 February 2010 (Story by Sam Kean). A theory linking chronic fatigue syndrome (CFS) to an infectious mouse virus known as XMRV has taken a second major hit. First proposed last October in Science, the virus-CFS connection was quickly challenged by a […]
Second XMRV Negative Study … Still In Search of a Proper and Robust Replication Study Suzanne D. Vernon, PhD Scientific Director The CFIDS Association of America
ABSENCE OF XENOTROPIC MURINE LEUKAEMIA VIRUS-RELATED VIRUS (XMRV) IN UK PATIENTS WITH CHRONIC FATIGUE SYNDROME RETROVIROLOGY: 2010, 7, 10
The British Medical Journal has now published a number of responses to the challenging editorial by Santhouse et al on issues raised by the death of Lynn Gilderdale. Read them here.
Hansard source David Drew, the Labour MP for Stroud, has asked his fourth parliamentary question about ME/CFS in the space of three weeks. This time he asked whether the Secretary of State for Work and Pensions will take steps to ensure that the effects of retrovirus and other illnesses associated with myalgic encephalomyelitis are fully […]
This editorial comment appeared in the British Medical Journal today (11 February 2010). It is written by Dr Alastair M Santhouse, Professor Matthew Hotopf and Professor Anthony David. The ME Association will respond later in the week.
Greg and Linda Crowhurst posted this on the internet today (9 February 2010) From time to time, the ME Association website publishes personal accounts about ME/CFS which we call ME Perspectives. This one is certainly very powerful. To read the others – only four so far, including this one by the Crowhursts – type ‘MEPerspective’ […]