Archive of MEA Surveys

What is your overall opinion of the new NICE guideline on ME/CFS?

• It is a significant improvement (27%, 358 Votes)
• It is a good improvement (18%, 233 Votes)
• It is a step in the right direction (49%, 642 Votes)
• I don't see any difference (4%, 48 Votes)
• It is worse than the current guideline (1%, 19 Votes)
• I do not intend reading it (1%, 16 Votes)

Total Voters: 1,316

Start Date: November 10, 2020 @ 11:52 am
End Date: No Expiry

Have you had a flu vaccination either this year, or within the past five years? If so, what effect did this have on your ME symptoms?

• Minor exacerbation (12%, 136 Votes)
• Moderate exacerbation (11%, 115 Votes)
• Severe exacerbation (8%, 86 Votes)
• No effect (32%, 345 Votes)
• Minor improvement (1%, 9 Votes)
• Major improvement (0%, 2 Votes)
• Do not have the flu vaccination (36%, 401 Votes)

Total Voters: 1,094

Start Date: October 7, 2020 @ 7:05 am
End Date: No Expiry

How has your M.E affected your attendance at school, college, or university during the past academic year, prior to lockdown?

• I managed education with good attendance (5%, 16 Votes)
• I managed education with some absences (16%, 49 Votes)
• I managed education with poor attendance (22%, 67 Votes)
• I managed education with a reduced curriculum (9%, 28 Votes)
• I had home tutoring during this period (12%, 36 Votes)
• I could not manage education or receive home tuition (36%, 113 Votes)

Total Voters: 309

Start Date: September 10, 2020 @ 6:25 am
End Date: No Expiry

Have you experienced Severe or Very Severe M.E.? If so, for how long were you affected to this extent? Please visit the MEA blog for severity definitions etc.

• Up to a year (6%, 97 Votes)
• 1-2 years (8%, 129 Votes)
• 3-5 years (9%, 138 Votes)
• 5-7 years (5%, 82 Votes)
• 7-10 years (5%, 84 Votes)
• 10 years + (21%, 327 Votes)
• Whenever I relapse I experience Severe M.E. (24%, 371 Votes)
• Whenever I relapse I experience Very Severe M.E. (8%, 121 Votes)
• I have never experienced Severe M.E. (6%, 91 Votes)
• I have never experienced Very Severe M.E. (6%, 88 Votes)
• Other - please leave a comment on MEA Facebook. (1%, 21 Votes)

Total Voters: 1,123

Start Date: August 2, 2020 @ 7:13 pm
End Date: No Expiry

During the national covid-19 lockdown, have you felt confident in the NHS's ability to provide appropriate care and support for your needs as a person with ME/CFS?

• Yes, extremely confident. (2%, 22 Votes)
• Yes, confident. (2%, 24 Votes)
• Yes, reasonably confident. (4%, 48 Votes)
• I was uncertain. (9%, 109 Votes)
• No, doubtful. (16%, 191 Votes)
• No, I had no confidence. (30%, 350 Votes)
• No, I have no confidence in the NHS at the best of times. (37%, 438 Votes)

Total Voters: 1,182

Start Date: July 7, 2020 @ 7:42 am
End Date: No Expiry

How have you coped with the Covid-19 lockdown?

• Very well - no significant problems (15%, 239 Votes)
• Fairly well - but have had a few problems (22%, 343 Votes)
• Mixed - good and bad experiences (22%, 341 Votes)
• Not very well - have had quite a few problems (8%, 129 Votes)
• Badly - mainly with the practical problems like shopping (6%, 96 Votes)
• Badly - mainly with problems coping with M.E. and/or other medical conditions (11%, 171 Votes)
• Badly - mainly with mental health problems and/or loneliness (4%, 64 Votes)
• Badly - all three of the above (12%, 190 Votes)

Total Voters: 1,573

Start Date: May 6, 2020 @ 8:48 am
End Date: No Expiry

Are you taking simple self-help precautions against catching winter flu and the coronavirus/Covid-19?

• Yes, all the time (74%, 1,081 Votes)
• Yes, some of the time (16%, 234 Votes)
• No, not worried about these infections (3%, 46 Votes)
• No, not sure what to do (7%, 106 Votes)

Total Voters: 1,467

Start Date: March 3, 2020 @ 10:05 am
End Date: No Expiry

How would you describe the relationship you currently have with your GP in regard to ME/CFS?

• Excellent (7%, 35 Votes)
• Good (12%, 62 Votes)
• Fair - but room for improvement (15%, 79 Votes)
• Variable (8%, 44 Votes)
• Poor (10%, 55 Votes)
• Dreadful (12%, 65 Votes)
• No recent contact with GP regarding ME/CFS (19%, 101 Votes)
• I don’t have a regular GP – but relations have generally been good with whomever I see (2%, 8 Votes)
• I don’t have a regular GP – and relations have been very hard to establish and maintain (15%, 81 Votes)
• I do not have a GP (0%, 3 Votes)

Total Voters: 533

Start Date: February 4, 2020 @ 1:51 pm
End Date: No Expiry

If funding becomes available from the MRC would you be willing to take part in research that will investigate the genetics of M.E.?

• Yes. I have M.E. and I support this research. (91%, 455 Votes)
• Unsure. I have M.E. but I am not sure of my support at this stage. (5%, 24 Votes)
• No. I have M.E. but I do not support this research. (1%, 3 Votes)
• Yes. I don’t have M.E. but I support this research. (3%, 20 Votes)

Total Voters: 502

Start Date: January 6, 2020 @ 10:10 am
End Date: No Expiry

What has happened to your health as a result of ME over the last 12 months?

• Major Improvement (2%, 8 Votes)
• Moderate Improvement (2%, 12 Votes)
• Minor Improvement (7%, 33 Votes)
• No Overall Change - Stable (18%, 90 Votes)
• Minor Deterioration (18%, 89 Votes)
• Moderate Deterioration (33%, 169 Votes)
• Major Deterioration (21%, 104 Votes)
• Not had any M.E. symptoms in last 12 months (0%, 0 Votes)

Total Voters: 505

Start Date: December 3, 2019 @ 8:16 am
End Date: No Expiry