Archive of MEA Surveys

During the national covid-19 lockdown, have you felt confident in the NHS's ability to provide appropriate care and support for your needs as a person with ME/CFS?

• Yes, extremely confident. (2%, 22 Votes)
• Yes, confident. (2%, 24 Votes)
• Yes, reasonably confident. (4%, 48 Votes)
• I was uncertain. (9%, 109 Votes)
• No, doubtful. (16%, 191 Votes)
• No, I had no confidence. (30%, 350 Votes)
• No, I have no confidence in the NHS at the best of times. (37%, 438 Votes)

Total Voters: 1,182

Start Date: July 7, 2020 @ 7:42 am
End Date: No Expiry

How have you coped with the Covid-19 lockdown?

• Very well - no significant problems (15%, 239 Votes)
• Fairly well - but have had a few problems (22%, 343 Votes)
• Mixed - good and bad experiences (22%, 341 Votes)
• Not very well - have had quite a few problems (8%, 129 Votes)
• Badly - mainly with the practical problems like shopping (6%, 96 Votes)
• Badly - mainly with problems coping with M.E. and/or other medical conditions (11%, 171 Votes)
• Badly - mainly with mental health problems and/or loneliness (4%, 64 Votes)
• Badly - all three of the above (12%, 190 Votes)

Total Voters: 1,573

Start Date: May 6, 2020 @ 8:48 am
End Date: No Expiry

Are you taking simple self-help precautions against catching winter flu and the coronavirus/Covid-19?

• Yes, all the time (74%, 1,081 Votes)
• Yes, some of the time (16%, 234 Votes)
• No, not worried about these infections (3%, 46 Votes)
• No, not sure what to do (7%, 106 Votes)

Total Voters: 1,467

Start Date: March 3, 2020 @ 10:05 am
End Date: No Expiry

How would you describe the relationship you currently have with your GP in regard to ME/CFS?

• Excellent (7%, 35 Votes)
• Good (12%, 62 Votes)
• Fair - but room for improvement (15%, 79 Votes)
• Variable (8%, 44 Votes)
• Poor (10%, 55 Votes)
• Dreadful (12%, 65 Votes)
• No recent contact with GP regarding ME/CFS (19%, 101 Votes)
• I don’t have a regular GP – but relations have generally been good with whomever I see (2%, 8 Votes)
• I don’t have a regular GP – and relations have been very hard to establish and maintain (15%, 81 Votes)
• I do not have a GP (0%, 3 Votes)

Total Voters: 533

Start Date: February 4, 2020 @ 1:51 pm
End Date: No Expiry

If funding becomes available from the MRC would you be willing to take part in research that will investigate the genetics of M.E.?

• Yes. I have M.E. and I support this research. (91%, 455 Votes)
• Unsure. I have M.E. but I am not sure of my support at this stage. (5%, 24 Votes)
• No. I have M.E. but I do not support this research. (1%, 3 Votes)
• Yes. I don’t have M.E. but I support this research. (3%, 20 Votes)

Total Voters: 502

Start Date: January 6, 2020 @ 10:10 am
End Date: No Expiry

What has happened to your health as a result of ME over the last 12 months?

• Major Improvement (2%, 8 Votes)
• Moderate Improvement (2%, 12 Votes)
• Minor Improvement (7%, 33 Votes)
• No Overall Change - Stable (18%, 90 Votes)
• Minor Deterioration (18%, 89 Votes)
• Moderate Deterioration (33%, 169 Votes)
• Major Deterioration (21%, 104 Votes)
• Not had any M.E. symptoms in last 12 months (0%, 0 Votes)

Total Voters: 505

Start Date: December 3, 2019 @ 8:16 am
End Date: No Expiry

What are the most important issues about M.E. that you want your MP to raise/lobby about after the general election?

• Increased government funding for biomedical research (13%, 148 Votes)
• Inappropriate use of CBT and/or GET by the NHS (10%, 120 Votes)
• Fair and accurate medical assessments for DWP benefits (11%, 131 Votes)
• Children and adolescents - NHS services, education, inappropriate child care referrals (4%, 49 Votes)
• Severe ME - prioritising NHS home visits, including improving social and respite care (7%, 81 Votes)
• Provision of home visits from GPs for those that request them (6%, 74 Votes)
• Problems with local NHS specialist and/or referral services (7%, 80 Votes)
• Increased availability of all aspects of specialist/hospital based care (5%, 60 Votes)
• Provision of accurate and continuing medical education for all health professionals (12%, 133 Votes)
• Ending the stigma still surrounding the condition (10%, 114 Votes)
• All of the above (13%, 146 Votes)
• None of the above - please share your comments (0%, 0 Votes)
• Other - please share your comments (1%, 8 Votes)

Total Voters: 307

Start Date: November 5, 2019 @ 7:51 am
End Date: No Expiry

Do you own a pet? You can choose as many options as you like.

• Yes - Dog/s (26%, 153 Votes)
• Yes - Cat/s (24%, 138 Votes)
• Yes - Dog/s and Cat/s (6%, 35 Votes)
• Yes - Fish (5%, 29 Votes)
• Yes - Rabbit/s (2%, 14 Votes)
• Yes - Reptile/s (2%, 13 Votes)
• Yes - Horse/s (1%, 5 Votes)
• Yes - Rodent/s (1%, 7 Votes)
• Yes - Another type of pet (2%, 14 Votes)
• No - Can't own a pet due to ME/CFS severity (14%, 84 Votes)
• No - Can't own a pet due to allergies (4%, 24 Votes)
• No - Can't own a pet due mainly to cost (3%, 20 Votes)
• No - Can't own a pet due to a lack of space/facilities (5%, 32 Votes)
• No - Don't really like pets (2%, 14 Votes)

Total Voters: 454

Start Date: October 4, 2019 @ 10:20 am
End Date: No Expiry

If you were/are a pupil/student with M.E. what level of support did you receive from your school, college or university to help you manage your condition and remain in education?

• Excellent Support (4%, 4 Votes)
• Good Support (4%, 4 Votes)
• Adequate Support (1%, 1 Votes)
• Patchy Support – It was sometimes helpful, sometimes not (18%, 16 Votes)
• Unhelpful Support (8%, 7 Votes)
• Detrimental Support (11%, 10 Votes)
• No Support – I was unable to continue my studies and had to drop out (54%, 49 Votes)

Total Voters: 91

Start Date: September 4, 2019 @ 11:07 am
End Date: No Expiry

What category of illness severity best reflects your (or the person you care for's) current level of disability? Please refer to the current blog that provides the definitions.

• Mild (9%, 56 Votes)
• Moderate (42%, 268 Votes)
• Severe (39%, 252 Votes)
• Very Severe (10%, 62 Votes)

Total Voters: 638

Start Date: August 5, 2019 @ 10:05 am
End Date: No Expiry