Archive of MEA Surveys

    Have you experienced Severe or Very Severe M.E.? If so, for how long were you affected to this extent? Please visit the MEA blog for severity definitions etc.

    • Up to a year (6%, 97 Votes)
    • 1-2 years (8%, 129 Votes)
    • 3-5 years (9%, 138 Votes)
    • 5-7 years (5%, 82 Votes)
    • 7-10 years (5%, 84 Votes)
    • 10 years + (21%, 327 Votes)
    • Whenever I relapse I experience Severe M.E. (24%, 371 Votes)
    • Whenever I relapse I experience Very Severe M.E. (8%, 121 Votes)
    • I have never experienced Severe M.E. (6%, 91 Votes)
    • I have never experienced Very Severe M.E. (6%, 88 Votes)
    • Other - please leave a comment on MEA Facebook. (1%, 21 Votes)
    • Total Voters: 1,123

Start Date: August 2, 2020 @ 7:13 pm
End Date: No Expiry

    During the national covid-19 lockdown, have you felt confident in the NHS's ability to provide appropriate care and support for your needs as a person with ME/CFS?

    • Yes, extremely confident. (2%, 22 Votes)
    • Yes, confident. (2%, 24 Votes)
    • Yes, reasonably confident. (4%, 48 Votes)
    • I was uncertain. (9%, 109 Votes)
    • No, doubtful. (16%, 191 Votes)
    • No, I had no confidence. (30%, 350 Votes)
    • No, I have no confidence in the NHS at the best of times. (37%, 438 Votes)
    • Total Voters: 1,182

Start Date: July 7, 2020 @ 7:42 am
End Date: No Expiry

    How have you coped with the Covid-19 lockdown?

    • Very well - no significant problems (15%, 239 Votes)
    • Fairly well - but have had a few problems (22%, 343 Votes)
    • Mixed - good and bad experiences (22%, 341 Votes)
    • Not very well - have had quite a few problems (8%, 129 Votes)
    • Badly - mainly with the practical problems like shopping (6%, 96 Votes)
    • Badly - mainly with problems coping with M.E. and/or other medical conditions (11%, 171 Votes)
    • Badly - mainly with mental health problems and/or loneliness (4%, 64 Votes)
    • Badly - all three of the above (12%, 190 Votes)
    • Total Voters: 1,573

Start Date: May 6, 2020 @ 8:48 am
End Date: No Expiry

    Are you taking simple self-help precautions against catching winter flu and the coronavirus/Covid-19?

    • Yes, all the time (74%, 1,081 Votes)
    • Yes, some of the time (16%, 234 Votes)
    • No, not worried about these infections (3%, 46 Votes)
    • No, not sure what to do (7%, 106 Votes)
    • Total Voters: 1,467

Start Date: March 3, 2020 @ 10:05 am
End Date: No Expiry

    How would you describe the relationship you currently have with your GP in regard to ME/CFS?

    • Excellent (7%, 35 Votes)
    • Good (12%, 62 Votes)
    • Fair - but room for improvement (15%, 79 Votes)
    • Variable (8%, 44 Votes)
    • Poor (10%, 55 Votes)
    • Dreadful (12%, 65 Votes)
    • No recent contact with GP regarding ME/CFS (19%, 101 Votes)
    • I don’t have a regular GP – but relations have generally been good with whomever I see (2%, 8 Votes)
    • I don’t have a regular GP – and relations have been very hard to establish and maintain (15%, 81 Votes)
    • I do not have a GP (0%, 3 Votes)
    • Total Voters: 533

Start Date: February 4, 2020 @ 1:51 pm
End Date: No Expiry

    If funding becomes available from the MRC would you be willing to take part in research that will investigate the genetics of M.E.?

    • Yes. I have M.E. and I support this research. (91%, 455 Votes)
    • Unsure. I have M.E. but I am not sure of my support at this stage. (5%, 24 Votes)
    • No. I have M.E. but I do not support this research. (1%, 3 Votes)
    • Yes. I don’t have M.E. but I support this research. (3%, 20 Votes)
    • Total Voters: 502

Start Date: January 6, 2020 @ 10:10 am
End Date: No Expiry

    What has happened to your health as a result of ME over the last 12 months?

    • Major Improvement (2%, 8 Votes)
    • Moderate Improvement (2%, 12 Votes)
    • Minor Improvement (7%, 33 Votes)
    • No Overall Change - Stable (18%, 90 Votes)
    • Minor Deterioration (18%, 89 Votes)
    • Moderate Deterioration (33%, 169 Votes)
    • Major Deterioration (21%, 104 Votes)
    • Not had any M.E. symptoms in last 12 months (0%, 0 Votes)
    • Total Voters: 505

Start Date: December 3, 2019 @ 8:16 am
End Date: No Expiry

    What are the most important issues about M.E. that you want your MP to raise/lobby about after the general election?

    • Increased government funding for biomedical research (13%, 148 Votes)
    • Inappropriate use of CBT and/or GET by the NHS (10%, 120 Votes)
    • Fair and accurate medical assessments for DWP benefits (11%, 131 Votes)
    • Children and adolescents - NHS services, education, inappropriate child care referrals (4%, 49 Votes)
    • Severe ME - prioritising NHS home visits, including improving social and respite care (7%, 81 Votes)
    • Provision of home visits from GPs for those that request them (6%, 74 Votes)
    • Problems with local NHS specialist and/or referral services (7%, 80 Votes)
    • Increased availability of all aspects of specialist/hospital based care (5%, 60 Votes)
    • Provision of accurate and continuing medical education for all health professionals (12%, 133 Votes)
    • Ending the stigma still surrounding the condition (10%, 114 Votes)
    • All of the above (13%, 146 Votes)
    • None of the above - please share your comments (0%, 0 Votes)
    • Other - please share your comments (1%, 8 Votes)
    • Total Voters: 307

Start Date: November 5, 2019 @ 7:51 am
End Date: No Expiry

    Do you own a pet? You can choose as many options as you like.

    • Yes - Dog/s (26%, 153 Votes)
    • Yes - Cat/s (24%, 138 Votes)
    • Yes - Dog/s and Cat/s (6%, 35 Votes)
    • Yes - Fish (5%, 29 Votes)
    • Yes - Rabbit/s (2%, 14 Votes)
    • Yes - Reptile/s (2%, 13 Votes)
    • Yes - Horse/s (1%, 5 Votes)
    • Yes - Rodent/s (1%, 7 Votes)
    • Yes - Another type of pet (2%, 14 Votes)
    • No - Can't own a pet due to ME/CFS severity (14%, 84 Votes)
    • No - Can't own a pet due to allergies (4%, 24 Votes)
    • No - Can't own a pet due mainly to cost (3%, 20 Votes)
    • No - Can't own a pet due to a lack of space/facilities (5%, 32 Votes)
    • No - Don't really like pets (2%, 14 Votes)
    • Total Voters: 454

Start Date: October 4, 2019 @ 10:20 am
End Date: No Expiry

    If you were/are a pupil/student with M.E. what level of support did you receive from your school, college or university to help you manage your condition and remain in education?

    • Excellent Support (4%, 4 Votes)
    • Good Support (4%, 4 Votes)
    • Adequate Support (1%, 1 Votes)
    • Patchy Support – It was sometimes helpful, sometimes not (18%, 16 Votes)
    • Unhelpful Support (8%, 7 Votes)
    • Detrimental Support (11%, 10 Votes)
    • No Support – I was unable to continue my studies and had to drop out (54%, 49 Votes)
    • Total Voters: 91

Start Date: September 4, 2019 @ 11:07 am
End Date: No Expiry

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