BIGGIVE CHRISTMAS CHALLENGE
RAISE MONEY FOR ME/CFS RESEARCH
Nov 30 – 7 Dec
We support people with ME/CFS & Long Covid
The ME Association is a national charity that supports thousands of people with ME/CFS each year in the UK.
It is estimated that between 130,000 and 260,000 (0.2 – 0.4% of the population) adults and children are struggling to live with this life changing condition.
ME/CFS is a recognised neurological disease affecting people from all socio-economic and ethnic backgrounds.
It can lead to long-term disability and a lower quality of life than multiple sclerosis or cancer.
At least 25% of the people affected will be housebound or bedbound at any one time. Those with the most severe form of the disease will need 24-hour care.
For many, ME/CFS is a complex post-viral fatigue syndrome that impacts a person's ability to function and is often triggered by an acute infection.
ME/CFS is known by several names e.g. Myalgic Encephalopathy – the name we prefer – Myalgic Encephalomyelitis, or Chronic Fatigue Syndrome.
We campaign to raise awareness of the inequalities affecting this large patient community and we aim to achieve respect and fair treatment for all.
We fund and support vital biomedical research and offer education and training for healthcare professionals who want to learn more about this often-misunderstood medical condition.
In November 2021, the National Institute for Health and Care Excellence (NICE), published a new clinical guideline for ME/CFS that provides a much improved framework of recommendations to the NHS and social care services. We hope this will lead to better recognition and services for people with the condition.
During the Covid pandemic we have been providing timely information about the risks associated with Covid-19 infection to people with ME/CFS. And, we have used our expertise to offer management information to those with Long Covid – another post-viral fatigue syndrome affecting an estimated 1,000,000 people in the UK.
We’re here for you!