Dr Charles Shepherd Since January we have been collecting feedback from people with ME/CFS who have had a Covid vaccine. At the start, this was mainly from health and social care workers who have ME/CFS and those over 70 years of age. But with vaccination now being carried out in people who have health conditions […]
News | The ME Association
The Times: Asthma and ME sufferers miss out in database chaos.
Sean O’Neill Dr Shepherd was interviewed by Sean O’Neill for this article which appeared in the print edition of The Times yesterday. It highlights some of the confusion and frustration people with ME/CFS are experiencing when trying to gain priority access to the Covid vaccine. Visit this section of the MEA website to access free […]
Should people with ME/CFS have a Covid-19 vaccination?
Neil Riley, Chairman, ME Association Should people with ME/CFS have the Covid vaccination? That’s a hard but not impossible question to answer. You would not want to get Covid. It’s a terrible disease. You don’t want to make your ME/CFS worse. No one does. And getting the Covid infection on top, would make life even […]
Autonomic Nervous System (ANS) Dysfunction in Long Covid and in ME/CFS
ANS dysfunction can cause dizziness, light-headedness, blurred vision, mental confusion, nausea and feeling faint, or even fainting.
The Mirror: Vulnerable say they’ve been ‘forgotten’ as Covid vaccine goes to young and healthy
“It’s just a postcode lottery, isn’t it?”, says Claire Tripp, whose 19-year-old daughter Emma has severe ME.
‘Horizon’ TV interview gives a hugely encouraging boost to people with ME/CFS
“The people who have been shouting about M.E. and CFS for the last 20 years are suddenly being heard.”
ME Essential Magazine: Spring Issue now available!
The members magazine is packed full of content relating to ME/CFS – news, research, interviews, medical information, Ask the Doctor, letters, tips, Real Lives, Relationships, Covid-19 and the new NICE clinical guideline!
Holly and Charlie launch their own campaign for ME research
Paramedic’s children want to raise lots of money for ME research
To ease us out of FeBLUEary, Lee is depicting the whole Blue Planet – one painting at a time
Contact Lee on Instagram at stammertime10 if you would like to buy one of his prints.
It’s so easy to use GiveaCar. We receive a donation every time
A simple phone call or email – and GiveACar will relieve you of all responsibility for that troublesome car, van or motorbike.
Lockdown quiz night marks up a year of pulling in happy crowds for the MEA
Claire Ayshford Smy tells us how she’s kept her quiz nights happy and hopeful
Secretary of State for Health, Matt Hancock, on ME/CFS & Covid Vaccine Priority
“I want to assure you that we are committed to vaccinating according to need, and you will not be left out or forgotten in this process.”
ME and My Family – A Husband’s View of ME/CFS
“M.E. is a stealthy thief; it creeps into your life and steals whatever it can. It has stolen a wife, a mummy, and a strong and independent woman.”
Vaccine priority list – latest on our actions in England, Wales and Scotland
Our medical adviser sums up what’s happening with respect to Covid-19 vaccine priority in England, Wales and Scotland.
I’m home, mum! Conquering hero finishes his sub-zero marathon walk
Joe Rowsell walked over 60 miles overnight in freezing weather to raise money for our Ramsay Research Fund.
BMA Journal: Long COVID – we’ve been here before
Dr Charles Shepherd says he believes the medical world is now taking post viral fatigue very seriously.
Covid Vaccinations and ME/CFS: Community Feedback!
We provide a summary of the feedback received from people with ME/CFS who have had the vaccine or who have tried to get the vaccine as a priority.
LATEST: COVID-19, ME/CFS and the JCVI Priority Vaccination List
We have heard back from the JCVI about the situation for people with ME/CFS and Covid vaccine priority.
These boots are made for walking! Joe’s marathon begins at midnight tonight
After days of training, all that’s left now is his marathon walk of 70 miles
The Vegepa Club comes up winning again for biomedical research into ME/CFS
The Vegepa Club and our Ramsay Research Fund have history – stretching back many years,