The 2018 Edition of the ME Association Clinical and Research Guide for ME/CFS | 27 June 2018

June 27, 2018


Dr Charles Shepherd, Hon. Medical Adviser, ME Association

The 10th edition of the ME Association clinical and research guide for ME/CFS is a thoroughly revised and updated version that can now be ordered from our website shop.

A must-have for anyone who has been affected by ME/CFS

The guide covers symptoms, assessment, diagnosis, illness management, pharmacological treatments and much, much, more. It informs, educates and helps raise awareness of this all too often misunderstood disease.

It directs readers to more detailed ME Association leaflets from our extensive online library, and summarises all relevant published research. And, it also includes over 600 references to key research papers and clinical trial results.

And we can now offer our clinical and research guide on Kindle! The same great price but easier to access…

Everything that health professionals need to know…

“…the most comprehensive, evidence-based summary currently available…”

The ‘Purple Book’ as it has become known, also discusses the very welcome review of the NICE clinical guideline.

And it details all the research, including of the ME/CFS Biobank, that is being funded by the ME Association Ramsay Research Fund.

This 147-page authoritative publication represents the most comprehensive, evidence-based summary currently available and contains everything that health professionals and patients need to know about this devastating neurological disease.

Free copies available…

We still have funds available in our medical education budget to send free copies of the guide to health professionals.

We just need to know their name(s) and surgery/hospital address.

  • Contact ME Association Head Office via email,
  • Please title the email: ‘MEA Purple Book 2018', or,
  • Telephone: 01280 818964 weekdays, between 9.30am and 3.00pm.

…with accompanying letter

The clinical and research guide will then be sent with an accompanying letter from myself in which I also highlight the ongoing NICE clinical guideline review and our concerns about graded exercise therapy (GET).

In support of the ME Association's position on GET (i.e. that it should be withdrawn as a recommended treatment from the current NICE guideline), we are also including a copy of the recent letter from Professor Mark VanNess and the Workwell Foundation research group in America.

Comments on both content and presentation of the MEA purple book are always welcome and should be sent for my attention to our head office via email.

More information:

  • You can read extracts from the ‘Purple Book’ on our website in the What is ME? section.
  • However, to read the full content, including the extensive research section, you will need to order the full guide.
  • You might also be interested in the Index of ME/CFS Published Research which we update monthly, and is available as a free download.



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