The ME Association has submitted the following comments to the consultation on the proposed, new American Diagnostic and Statistical Manual of Mental Disorders, otherwise known as the “DSM-5”. Our contribution …
The Countess of Mar tabled a written question that asked the Government whether they will strengthen the voluntary responsibility placed on schools to support the health and well-being of children …
Parliamentary Question: supporting children with medical needs in school, 8 June 2011 Read More »
Ian Swales, Liberal Democrat MP for Redcar, tabled a written question that asked the Secretary of State for Education to bring forward legislative proposals requiring schools to support the health …
Parliamentary Question: special medical needs at school and ME, 7 June 2011 Read More »
From the British Medical Journal, 6 June 2011 (news story by Matthew Limb) Researchers are facing calls to retract published findings that link chronic fatigue syndrome to a retrovirus called …
BBC Alba, the Scottish Gaelic Channel, is making a documentary about living with ME/CFS. We would love to hear from any Scots and, in particular, Gaelic speakers with strong stories …
From the Royal College of Physicians’ website, 7 June 2011. A new report from the Royal College of Physicians and the Association of British Neurologists says that overall, services for …
The Countess of Mar has been asking a stream on questions about ME/CFS which were answered in Parliament on June 6 – in addition to the question about the future …
Parliamentary Questions, Countess of Mar, 6 June 2011 Read More »
Earl Howe, Parliamentary Under Secretary of State for Health, has supplied a fragment more information to the Countess of Mar about the proposed closure of the ME/CFS in-patient unit at …
If anyone can help with the following inquiry received today, please comment to our blog on this page or email meconnect@meassociation.org.uk We’ll pass any good advice on. I have had …
An M.E. gardener’s nightmare: how to control the weeds on the drive? Read More »
Letter to the ‘Boston Globe’, 6 June 2011 (letter from Dr Alan Gurwitt, board member with the Massachusetts CFIDS/ME and FM Association). RE “REPORT deals blow to fatigue sufferers’’ (Page …
‘Many still suffer as we probe the cause of chronic fatigue’, Boston Globe, 6 June 2011 Read More »
From the Sunday Telegraph, 5 June 2011 (story by Bryony Gordon) As one half of Britain’s most powerful political couples, she is fiercely protective of her private life. But Yvette …
‘Hay Festival: Yvette Cooper talks of battle with ME’: Sunday Telegraph, 5 June 2011 Read More »
From ‘Nature’ magazine, news, 3 June 2011 (story by Ewen Callaway). XMRV’s 15 minutes of fame seem to be up. The hypothesis that the retrovirus has a role in chronic …
‘Chronic fatigue syndrome: life after XMRV’, ‘Nature’ news, 3 June 2011 Read More »
Press release issued on 2 June 2011 by the US National Institutes of Health. Delineation of the origin of the retrovirus known as XMRV from the genomes of laboratory mice …
From ‘RealClear Science‘, the Washington Post’s science blog, 2 June 2011 (story by Llewellyn King) What’s in a name? A great deal, if you suffer from awful, long-term diseases that …
‘Chronic Fatigue Syndrome is Misunderstood’, Washington Post science blog, 2 June 2011 Read More »
From The Independent ‘Commentators’ section, 3 June 2011 (story by Steve Connor, science editor). Science is a messy business. We like to think that it can give us clear-cut answers …
‘The painstaking way science really works’, The Independent, 3 June 2011 Read More »
We have been asked to publicise this parliamentary initiative. So far 52 MPs have signed Early Day Motion 1791, entitled ‘Impact of Government Reforms on Disabled People’. Our correspondent writes: …
Could you ask your MP to support this Early Day Motion? Read More »
From the Reno Gazette-Journal, 1 June 2011 (story by Lauran Neergard). WASHINGTON — Two new studies say a link between a virus and chronic fatigue syndrome probably was a false …
From WebMD, 1 June 2011 (story by Brenda Goodman). June 1, 2011 — A retrovirus found in the blood samples of some patients with chronic fatigue syndrome likely appeared there …
‘New Doubts on XMRV as Chronic Fatigue Syndrome Cause’, WebMD, 1 June 2011 Read More »
From the Wall Street Journal health blog, 1 June 2011 (story by Amy Dockser Marcus). The journal Science has cast doubt on a 2009 paper it published linking the virus …
Further XMRV reporting from the Wall Street Journal’s Amy Dockser Marcus, 1 June 2011 Read More »
Calling all MEA supporters and fundraisers! The date for next year’s BUPA London 10,000 has been set – 27 May 2012 – and the ME Association has bought eight places …
Join ‘Team MEA’ in the BUPA London 10k Race in 2012 Read More »
