Failures by the NHS in many parts of the country to deliver adequate services to children and adults with ME/CFS, lack of training for doctors and poor performance by the Department of Work and Pensions and its contractor for medical assessments have been slammed by a Parliamentary group this week.
The All Party Parliamentary Group on ME at their meeting on Wednesday (10 March 2010) unveiled its final report on the state of NHS services in England for people with the illness.
Immediately afterwards, group chairman Dr Des Turner MP commented:
“Our report sets out clearly some long standing problems which are simply not being tackled by organisations that should be doing a much better job of supporting the 250,000 people in the UK with ME/CFS.
“We are particularly concerned by the failure of many Primary Care Trusts to fund any services for ME/CFS patients, especially children and the most severely affected.
“We are also deeply concerned by the by the poor knowledge that many doctors have about this illness and by the failure of the DWP and its contractor ATOS to understand its adverse impact on many patients’ ability to undertake regular work.”
The report was prepared by MPs Des Turner, Tony Wright, Andrew Stunell, Peter Luff and the Countess of Mar.
It set out to evaluate the extent to which the NHS is providing care for people with ME – particularly in primary and secondary care, and in specialist centres and multi-disciplinary teams.
It sets out 11 recommendations to address the inequalities faced by people with ME.
The final report can be downloaded here (202.64 KB)