Dr Des Turner MP, Chair of the All Party Parliamentary Group (APPG) on ME, has set up a website for the APPG – which includes a section about the APPG’s inquiry into NHS service provision for people with ME/CFS in England .
People with ME, their carers, health professionals, organisations and others with an interest in ME are invited to submit written evidence to the inquiry by 30 June 2009.
Extract from the Terms of Reference
Organisations and individuals are invited to submit written evidence. The strong preference is for written evidence to be in Word format – not PDF format – and sent by e-mail to firstname.lastname@example.org
However it recognised that many people with M.E. will not have the use of computers or internet facilities and so typewritten scripts and legible hand written scripts will also be accepted.
The body of the e-mail or covering letter must include a contact name, telephone number and postal address. The e-mail/covering letter should also make clear if the submission is from an individual or on behalf of an organisation. The deadline is 30 June 2009.
Submissions must address the terms of reference. They should be in the format of a self-contained memorandum and should be no more than 3,000 words. Paragraphs should be numbered for ease of reference, and the document must include an executive summary. Submissions should be original work, not previously published or circulated elsewhere, though previously published work can be referred to in a submission and submitted as supplementary material. Once submitted, your submission becomes the property of the APPG. The APPG will expect to publish the written evidence it receives
Evidence sessions are likely to commence 14 July 2009 and a later notice will give details of these.
MEA Editorial Note
We've been asked to explain the meaning of the term ‘Executive Summary' by someone unfamiliar with this type of submission.
Once you've compiled your statement and numbered the paragraphs, return to the beginning and insert a statement summarising the content, which should be as brief as possible. Keep it to a single page. If necessary break it up into paragraphs for ease of reading. Display the main thrust of your argument in the Executive Summary. Avoid including secondary or extraneous matters, which will be contained in your main evidence submission anyway.
This is your main chance to persuade the inquiry administrator Nick Osborne, who will be sifting through all the submissions received, that your submission will be worth considering by the Inquiry Team as a whole, and may even merit an invitation to appear before the inquiry to give your evidence in person.