The ME Association will be fully supporting the two people with ME – Douglas Fraser and Kevin Short – who have succeeded in achieving a Judicial Review into the 2007 NICE Guideline on ME/CFS.
The Judicial Review, which could result in the NICE guideline being withdrawn, is taking place at the Royal Courts of Justice in The Strand, London on 11 and 12 February.
- NICE has broadened the diagnostic criteria as to what can be diagnosed as ME/CFS.
- NICE advocates a "two sizes fits all" approach to management in that far too much emphasis is being placed on the role of cognitive behaviour therapy (CBT) and graded exercise therapy (GET) – treatments that significant numbers of people with ME/CFS consistently report to be either ineffective or even harmful in the case of graded exercise.
- NICE has failed to provide adequate information on symptomatic relief, particularly in the area of pain control.
- NICE has failed to properly address, or not addressed at all, many of the important non-drug aspects of management such as benefit provision; diet and nutrition; and occupational health.
Note to Editors:
For more details about the ME Association's position, please contact:
Tony Britton, Publicity Manager, The ME Association
Tel: 01406 370293 Mob: 07880 502927 Email