The 4th Invest in ME International ME/CFS Conference 2009

Management, Treatments and the Latest Advances in Research into ME/CFS

Conference Update – January 2009

Welcome to the 4th International ME/CFS Conference 2009 in Westminster, London, UK, on Friday 29th May 2009.

Following the successful IiME International ME/CFS conference in London in May 2008 which dealt with Sub Grouping and Treatments of ME/CFS we now look at the subjects of:

  • the ME Clinic
  • diagnosis of ME/CFS
  • treatments for ME/CFS
  • epidemics of ME/CFS
  • news from the latest biomedical research into ME/CFS

We will include management and treatment of severe ME – which many consider to be the area where research will uncover treatments and cures for the various sub groups of this illness.

Invest in ME announce the following speakers:

Chair: Professor Jonathan Brostoff, MA DM DSc(Med) FRCP FRCPathFIBiol

Professor Jonathan Brostoff is Senior Research Fellow and Professor Emeritus of Allergy and Environmental Health at Kings College, London. He was the Foundation Professor of Allergy and Environmental Health and Director of the Centre for Allergy Research at University College London. Whilst at University College Hospital he was Physician in charge of the Allergy Clinic.

He is recognized as a leading international authority on food allergy and intolerance. Professor Brostoff was involved in one of the few, and much-quoted Spect scan studies of ME patients [Brainstem perfusion is impaired in patients with chronic fatigue syndrome. Costa DC, Tannock C and Brostoff J. Quarterly Journal of Medicine 1995:88:767 773]

Keynote Speech: Annette Whittemore

Founder and President of the Whittemore Peterson Institute for Neuroimmune Diseases, Reno, Nevada, USA. The Institute will be built on the medical campus of the University of Nevada. Its mission is to serve those with complex neuro-immune diseases such as ME/CFS, viral-induced central nervous system dysfunction and fibromyalgia. Annette Whittemore graduated in Elementary and Special Education at  the University of Nevada and taught children with neuro-cognitive  deficits, such as those found in autism, ADD, and learning  disabilities. As the director of the current operations at the Institute. Annette supports the basic and clinical research programme, and actively recruits physicians and other support personnel for the Institute.

Professor Garth Nicolson, PhD

President, Chief Scientific Officer and a Research Professor at the  Institute for Molecular Medicine, Laguna Beach, California, USA. Conjoint Professor, Faculty of Science and Technology, University of Newcastle, Australia. Professor of Integrative Medicine, Capital  University of Integrative Medicine, Washington DC. Professor Nicolson has published over 550 papers, three of them current content citation classics, and his recent publications include: Chronic Fatigue Syndrome patients subsequently diagnosed with Lyme Disease Borrelia burgdorferi: evidence for Mycoplasma species co-infections; Chronic infections in neurodegenerative and neurobehavioral diseases; New emerging infections: Their development, testing and resulting disease.

Dr John Chia, MD

Infectious disease specialist, Torrance, California, USA. He has published research (Chronic fatigue syndrome associated with chronic  enterovirus infection of the stomach) on the role of enteroviruses in  the aetiology of ME/CFS – an area which has been implicated as one of  the causes by a number of studies. There are more than 70 different types of enteroviruses that can affect the central nervous system, heart and muscles, all of which is consistent with the symptoms of ME/CFS. By analyzing samples of stomach tissue from 165 patients with CFS, Dr. Chia’s team discovered that 82% of these individuals had high levels of enteroviruses in their digestive systems. Dr Chia’s research may result in the development of antiviral drugs to treat the debilitating symptoms of ME/CFS.

Dr Jonathan Kerr, MD, PhD

Sir Joseph Hotung Senior Lecturer in Inflammation, St George’s University of London. Dr Kerr has published several papers on CFS and gene expression the latest one being: Differentially expressed genes in Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (CFS/ME) patients reveal seven subtypes with distinct clinical phenotypes.

Dr Barbara Baumgarten, MD, GP

Head of the recently opened ME-centre at Ullevål University Hospital, Oslo, Norway. Dr Baumgarten has seen ME patients in her private practice since 1997 and has had responsibility for specialised medical services for ME patients. Dr Baumgarten is a board member of the Oslo branch of the Norwegian Medical Association. The ME Centre in Oslo is unique in that patients have been closely involved in its formation.


Professor Kenny De Meirleir, MD, PhD

Director of the Human Performance Laboratory and Fatigue Clinic, The  Vrije Universiteit Brussels, Belgium.  Co-author of the book Chronic Fatigue Syndrome: A Biological  Approach and his published works cover many aspects of ME/CFS.  Current research involves the gut and ME/CFS. He has seen over 12000 ME/CFS patients and we are hoping of exciting new research findings to be presented at the conference.

Professor Sir Harald Nyland, MD, PhD

Department of Neurology, Haukeland University Hospital, Bergen, Norway. Professor Nyland has seen several thousand ME patients, among them many severely ill. His recent research involves an ME/CFS Epidemic Following a Giardia lamblia Infection in Bergen. Professor Nyland was knighted in 2007 for his services of over 30 years for MS patients in Norway.

Dr Daniel Peterson, MD

We also hope to have Dr Dan Peterson present. Dr Peterson is Medical Director, Whittemore Peterson Institute, Reno, Nevada, USA.  With over 25 years of medical practice, Dr Daniel L. Peterson has become a sought-after internist for diagnosing difficult and complex medical cases. When several patients in Incline Village became ill

with symptoms that resembled persistent mononucleosis, Daniel Peterson was one of the first physicians to recognize an outbreak of what is known as ME/Chronic Fatigue Syndrome (ME/CFS). He became a pioneering physician and researcher in understanding the biological characteristics and methods for diagnosing, managing and treating ME/CFS. He has also performed major studies of Ampligen as a treatment for ME/CFS, and studying the possible role of human herpes  virus 6 (HHV-6) in CFS patients.

Also present will be representatives of the European ME Alliance.

CPD Accreditation from the Royal colleges has been applied for and we  hope to obtain the maximum credits for the conference, as in previous years.

Discounted rate – Sponsor a Medic: IiME are offering a discounted rate for healthcare staff who are recommended to attend by a local ME Support Group. IiME welcome all professionals who are working with, or have an interest in, ME/CFS.

Background:

The Invest in ME conferences have attracted presenters and delegates from 15 countries and our DVDs of the conferences have been distributed to over 20 countries including Europe, USA, Canada, Australia and New Zealand.

Myalgic Encephalomyelitis is a serious neurological illness (classified by the World Health Organisation under ICD-10-93.3) that causes severe problems for an estimated 250,000 people in the UK, of whom 25,000 are estimated to be children and young people. It is five times more prevalent than HIV/AIDS in the UK and the leading cause of long-term absence of children from school.

The conference will be a unique opportunity to be informed of the latest research and information from some of the leading experts on ME/CFS in the areas of diagnosis, management, treatment, epidemiology and research.

Conference Registration:

We invite and welcome everyone who is interested in ME/CFS to attend this major international conference on ME/CFS.


For full details, click on this link to the Invest in ME website

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