Anyone with ME/CFS who has experience – good or bad – of the Essex-wide NHS service and would like to pass on their comments is being invited to make contact with Colchester ME Self-Help Group.
Widespread dissatisfaction with the service was expressed at a well-attended joint meeting with The ME Association at Colchester County High School for Girls in October and, since then, group chairman Vivienne Mills has been collecting service-user feedback which she intends to discuss with the service itself at a meeting on January 24.
She would now like to hear from service-users prepared to complete a short email questionnaire giving their own views, whether they are positive or negative. Questionnaires must be returned to Vivienne by January 20.
The ME Association continues to hear confusing accounts about what is being offered by the NHS service in Essex. Only on Friday, we received an email from someone saying she was told there was no longer a service being provided in Chelmsford – after being informed that she could not longer attend Professor Findley’s unit in Romford as she was now "out of area".