To mark ME Awareness Month, The ME Association wants to hear from as many people as possible about their experiences – good or bad – of coping with ME.
To do this we have produced a questionnaire which asks about treatments that work, treatments that don't work, and what people want when it comes to GP and hospital based services.
We also want to build up the biggest ever picture of what happens when people are given cognitive behaviour therapy or graded exercise therapy – two controversial forms of treatment that have been recommended in a guideline produced by NICE.
We can then go back to the Department of Health with a really comprehensive nationwide picture of this illness, along with recommendations on how diagnosis and services can be improved.
The survey will be open until 31 August 2008.
- If you have ME, or care for someone with ME, please try and fill in the questionnaire. Click on the link immediately below the ‘How do you cope?' box on our home page. A paper copy will be available later for use by people with ME, and their carers, who do not use the web.