2007 May

The MEA Ramsay Research Fund: guide to policy

Please note that a permanent link to this policy statement will shortly be provided on this website, and the statement will also appear in the July issue of our quarterly ME Essential magazine. THE MEA RAMSAY RESEARCH FUND (RRF) One of the many scandalous aspects of ME/CFS is the fact that research into the underlying […]

Walking the Amazon for ME research

The longest-ever expedition to be mounted to raise funds for ME research will start at the beginning of April next year – when former British Army captain Ed Stafford and professional outdoor instructor Luke Collyer take on the world’s second largest river. They plan to take a year to walk 4,000 miles from the source […]

Final call: Edinburgh conference, May 25

If anyone intending to come to the New Horizons: International  Conference on ME/CFS Biomedical Research http://www.meresearch.org.uk/newhorizons.html (on Friday 25th May 2007, at the Edinburgh Conference Centre, part of the campus of Heriot-Watt University, Edinburgh, UK) has not yet registered, please register by email or phone ASAP. The registration fee is £60, and included in this […]

Italian language ME/CFS website

We have just been notified of this Italian-language ME/CFS website and chat forum. CFSItalia  The site administrator tells us: CFSItalia’s aim is to brief patients, health care professionals and people with suspected CFS (Chronic Fatigue Syndrome) by publicising studies, research, centres of diagnosis addresses, recent findings, pathogenesis hypotheses, treatments and their results. In the Forum, […]

House of Commons, NICE, May 14

Brighton MP David Lepper tabled a question about the draft NICE guideline on clinical practice in ME/CFS. He received a written answer from Minister for Public Health Caroline Flint on May 14.

Joint statement on NHS Plus occupational health guidance | 14 May 2007

A total of 25 ME charities and organisations have now signed up to a joint statement on the recently published NHS Plus occupational health guidance for Chronic Fatigue Syndrome, which appears below. The statement has been sent to Dr Ira Madan, clinical standards director of NHS Plus, and was discussed at the All Party Parliamentary […]

Information about “Activive” wanted (UK & USA)

MAY BE REPOSTED   I am investigating therapeutic claims relating to ME/CFS that are being made in the UK for a ‘natural’ product known as Activive.   I would be be grateful for any information from anyone who has ever bought or used this product.   I understand that the country of origin for this […]

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